Hi Sharon
I am 33 and in the last three weeks, I took my baby to the doctor for her 4 month injections, was sent for an ultraound, was diagnosed and had a total left masectomy.
The week between diagnosis and surgery was just agony - I felt all of what you have described, every twinge, niggle it wa the cancer spreading. Having to go for the CT and bone scans to rule out spread terrifying. I was breastfeeding too and was advised to stop.
I am the third in my family and it has been reccomended to have genetic testing done but they didn't want to take the other breast just yet. I was disappointed with this as I just wanted to get it all over with but have followed the reccomendations of the surgeon to get on with the treatment and worry about the rest later
Now, a week or so past surgery I feel like a weight has been lifted off my chest. The sentinel nodes came back clear but I am Her2+ and grade 3. ??. It was hard being away from the bub and my toddler and not being able to lift them or have cuddles but I am getting stronger every day. I was so lucky my sister was able to come to help with the baby so I could focus on myself.
Next comes the appointments with the oncologists - I guess I have learnt in the last 3 weeks that the brain can only cope with so much and will just shut down/out. Things have happened so quickly I often wake up and forget that I am in this nightmare, only to remember.... I often think that the doctors are keeping things from me - I wonder if it is becasue they do this every day and know that we become overwhelmed with what is happening to us.
I am concentrating on eating and sleeping well and spending time with my children while I wait for the med onc appointment next week. The waiting is agony.?......