Forum Discussion
berry
7 years agoMember
Invasive Lobular Cancer (ILC)
Hi all, I have just discovered that ILC is lumped into general ductal breast cancer. America research have started to recognise there are huge differences. Treatment in Australia is the same as ductal cancer and even the metastasized areas are generally different to ductal cancers.. Australian research and recognition is way off. Does anyone else who has/had ILC been misinformed? kindly Berry
89 Replies
- Brenda5MemberJust to be different, I had stage 2 combination ILC and IDC with one node positive. It was also ER and weakly PR positive.
- berryMemberIt has just occurred to me that iBC women are paying the ultimate price with BSA using 2d mammograms for the greater problem of detecting early signs of breast cancer for the majority. I feel a martyr for this common good. It ain't my common good.
- berryMemberShe only mentioned that they will be rolled out in victoria in a couple of years. With more pressure on them- BSA maybe country folk who use the buses will benefit
- arpieMember@berry Good on you for contacting them ... You can make that an additional 20% of women failed by Breastscreen NSW - so 30-35% - as they actively discourage 40-49 year old women from getting free mammograms (altho perfectly entitled to it!) They tell them to see their GP instead.
NONE of their advertising includes 40-49 or 74+! :( ALL are able to access free mammograms.
Did BSA say the mammograms in the BUSES are going to be 3D as well? Whilst much better than the 2D - they are still not good enough for picking up all/most ILC - and yet they refuse to advise their clients who have dense breast tissue that they may need alternate scanning (US or other.) They do in WA!! - berryMemberSorry to hear that.
- kmakmMemberEven the 3D machines aren't perfect. It failed to detect considerable areas of DCIS in my breast which would have made a big difference to my breast cancer experience. As in, one less operation considerably less anxiety and stress. They are the best we have but not perfect.
- berryMemberI was called by a representative of Breast Screen Australia who guarantees that BSA has ordered 3d mammogram machines from Siemens and will be in use in a couple of years,starting in Victoria. What has taken them so long? Why haven't our esteemed oncology doctors not pressured Breast Screen Australia into getting 3d mammograms earlier? These doctors are the frontline observers of the failings of Breast Screen Australia's failed mammogram screening program for 10-15% of women.
- berryMemberthe more the women in the community know, there could be public out rage forcing the government/BSA into action. But lets wait until all fundraising activities are over. Lets say mount a campaign in June.
- kmakmMemberGood luck getting BreastScreen to listen to anything their 'consumers' have to say. Ask @arpie and @JJ70. It's like banging your head against a brick wall...
- berryMemberFirstly Breast Screen Australia need to invest in 3d mammograms making early diagnosis possible. Also literature needs to be made available NOW, educating women why their 2d mammograms might misdiagnose 10-15 % of women.