Forum Discussion
Invasive Lobular Cancer (ILC)
Hi all, I have just discovered that ILC is lumped into general ductal breast cancer. America research have started to recognise there are huge differences. Treatment in Australia is the same as ducta...
Thanks Brenda.. helpful stats. My first ductal Er+ HR-ve , I had chemo, then Arimidex for 2 years ..developed osteopenia , put on Tamoxifen for next three years. Two and a half years Off hormone therapy self discovered Grade 2 Invasive Lobular tumour. This, I think could have been developing through its cell divisions while I was on Tamoxifen! This pathology was not considered by the
practitioners who recommenced me on Tamoxifen. After three
years, fatigue was extreme I asked to go back into Arimidex.
Sc Prolia has been added for the bone loss. I cope well with
Arimidex.. I don’t seem to fit the stats! Especially the ongoing
cover when you’re off it. .... don’t ask me to ask the Onc, they
haven’t an answer.. too busy following basic recipes for intervention.
practitioners who recommenced me on Tamoxifen. After three
years, fatigue was extreme I asked to go back into Arimidex.
Sc Prolia has been added for the bone loss. I cope well with
Arimidex.. I don’t seem to fit the stats! Especially the ongoing
cover when you’re off it. .... don’t ask me to ask the Onc, they
haven’t an answer.. too busy following basic recipes for intervention.