EAA I am appalled by the lack of information and diagnostic tools for ILC. Towards the end of chem I asked the Peter Mac doctor what the diagnostic follow ups were and he just shrugged his shoulders and said in about six months you will have a mammogram. I have a persistent sore hip, couldn't get an appointment with a Peter Mac doctor so I have gone to my GP to get a referral for a CT scan. Neither of us know if that's the best detection tool but at least it is a start. I am sure the GP and I could nut out my predicament with some guidance from the Dr's at Peter Mac. But I am totally livered with Breast Screen Australia and Peter Mac and feel really strongly that there needs to be change. Even this website could do more for ILC, information for starters, I have also asked them to create a forum especially for ILC. Don't think that's going to happen either. The most important issue for all cancers is has it spread to the lymph nodes and be alert to any unusual persistent pain. Spreading to the bones is very, very typical for ILC. good luck EAA and hopefully we can force change.