Invasive Lobular Cancer (ILC)
Hi all, I have just discovered that ILC is lumped into general ductal breast cancer. America research have started to recognise there are huge differences. Treatment in Australia is the same as ducta...
Forum Discussion
Hi @berry
Unfortunately no this isn't news to me as I researched quite extensively when I was diagnosed...My Oncologist did discuss with me how ILC doesn't always respond as well as IDC to chemo, however was told that given my age (27) there wasn't really any decision about going ahead.
As far as I am aware, yes the US is pursuing a lot more research into this but there still isn't a defined treatment pathway for ILC yet..perhaps in the future there will be one differentiated from IDC. Given that almost all ILC's tend to be very hormone positive hormone therapy seems to be the big differentiating factor in terms of needing to comply with med regime (from what Ive read..Ive not yet started hormone therapy but have been advised 10 years).
Yes the areas it metastasises to are also generally different so something to be mindful of, I imagine most GPs don't know that so educating your GP to help follow up concerning symptoms might be necessary.
Have you visited the US lobular cancer website? I imagine you have :) Its very good. https://lobularbreastcancer.org
Hope you are well in your treatment
Unfortunately no this isn't news to me as I researched quite extensively when I was diagnosed...My Oncologist did discuss with me how ILC doesn't always respond as well as IDC to chemo, however was told that given my age (27) there wasn't really any decision about going ahead.
As far as I am aware, yes the US is pursuing a lot more research into this but there still isn't a defined treatment pathway for ILC yet..perhaps in the future there will be one differentiated from IDC. Given that almost all ILC's tend to be very hormone positive hormone therapy seems to be the big differentiating factor in terms of needing to comply with med regime (from what Ive read..Ive not yet started hormone therapy but have been advised 10 years).
Yes the areas it metastasises to are also generally different so something to be mindful of, I imagine most GPs don't know that so educating your GP to help follow up concerning symptoms might be necessary.
Have you visited the US lobular cancer website? I imagine you have :) Its very good. https://lobularbreastcancer.org
Hope you are well in your treatment