Hello

thanks Karen. it is so very reassuring to hear messages like yours. Im getting better at the living with cancer thing- but i really need to hear that the mets diagnosis doesnt necessarily mean a fast track.

hi everyone- my first time here as well. My secondary diagnosis came pretty much at the same time as my primary- so it's been a hell of a ride since last december. I have two children 11 and nearly 9- and completely understand the fear about not being there for them. I tell myself that I am watching them grow up- every day. Mostly that works. Mostly.
My bone met is in my sternum and lumbar region. So far- there has been no growth this year. I am hoping this means a long time of living with it.

Im just about to have another set of scans -ct and bone...the bone pain is a wierd pain...and Im just starting to have to consider radiation.

thanks for your words everyone-

It is really good not feeling so alone.

Jacinta

hi everyone- my first time here as well. My secondary diagnosis came pretty much at the same time as my primary- so it's been a hell of a ride since last december. I have two children 11 and nearly 9- and completely understand the fear about not being there for them. I tell myself that I am watching them grow up- every day. Mostly that works. Mostly.
My bone met is in my sternum and lumbar region. So far- there has been no growth this year. I am hoping this means a long time of living with it.

Im just about to have another set of scans -ct and bone...the bone pain is a wierd pain...and Im just starting to have to consider radiation.

thanks for your words everyone-

It is really good not feeling so alone.

Jacinta

Just noticed you mentioned you have liver mets. I was diagnosed in sept 2010 with liver and bone mets. Have undergone 2 lots iv chemo with regrowth liver mets and bone mets july2011. I am estrogen positive. I am currently stable and taking zoladex,xgeva and femara.

Hi Julie,

That is good news to hear that the bone mets have barely changed over 4 years, obviously the treatment is working well. I hope I will be in the same situation in 3.5years time.

I am currently on Aromasin and Xgenva injection once a month and oxycontin which is controlling pain which I experience on and off.  I was taking Femara initially when I was diagnosed with the second lot of cancer in my breast and then they changed it to Aromasin. Scans show that it is not necessary at the moment to have anymore radiation yet.  I have already had 10 sessions to the lower and upper spine area which helped immensely.

My last blood results showed that the cancer markers had decreased quite a lot therefore the medication I am taking is controlling the cancer at the moment.  I will have another blood test in a couple of weeks so I am hoping for a good result again.

Wishing you all the best and look forward to hearing from you again.

Pam

Hi Mary,

Yes, this website is very useful. I find it very hard to join a group around my area so this website is my only option and is very valuable.

Not good to hear about the latest results from the scan, however you never know what is around the corner with other treatment options. Have you been in much pain?

Let me know how you go with your next oncologist appointment.

Take Care,

Pam