Genetic Testing
Hi everyone not sure if there was already a group about gentic Testing so sorry if there is one. I am looking to get the genetic test done to see if I carry the gene. Just waiting for the paperwork t...
Forum Discussion
Hi Pahill. My mother had breast cancer at my age (51) and survived, my sister was diagnosed at 44 and didn't survive. I don't know if she paid for it or not, but my sister had genetic testing done three years before my diagnosis. It was negative for the tested genes (three, out of a possible nine I think). Since then, no new tests have been developed so there was no point in my doing it.
My breast surgeon sent my details to the Peter MacCallum Familial Cancer Centre and free of charge, I had a long phone conversation with the genetic counsellor. She then sent me a four page report. She'd had a look at my sister's results and the information she sent me was detailed and particular. It included amongst other things risk management information, advice about the pill & HRT, and risk factors for me, my remaining sister, and my daughter and niece.
For all those thinking about getting the information in reference to their relations, the report gives lots of guidance about what you should do. For example, my report said my sister has to have her GP check her breasts every six months and have yearly mammograms. There was information about how she could take Tamoxifen (which she refuses to do) or consider a prophylactic mastectomy, which she is thinking about. My daughter and niece have to start surveillance at 30.
Attached below is one of paragraphs in my report, which I found fascinating.
I hope this information has been useful. Good luck with your decision. Let us know what happens! K xox
My breast surgeon sent my details to the Peter MacCallum Familial Cancer Centre and free of charge, I had a long phone conversation with the genetic counsellor. She then sent me a four page report. She'd had a look at my sister's results and the information she sent me was detailed and particular. It included amongst other things risk management information, advice about the pill & HRT, and risk factors for me, my remaining sister, and my daughter and niece.
For all those thinking about getting the information in reference to their relations, the report gives lots of guidance about what you should do. For example, my report said my sister has to have her GP check her breasts every six months and have yearly mammograms. There was information about how she could take Tamoxifen (which she refuses to do) or consider a prophylactic mastectomy, which she is thinking about. My daughter and niece have to start surveillance at 30.
Attached below is one of paragraphs in my report, which I found fascinating.
I hope this information has been useful. Good luck with your decision. Let us know what happens! K xox