Forum Discussion
First blog
I was diagnosed with bc at the end of Feb being called back from a routine mammogram. It was grain of sand size they said and with my Mums history thought it best to do a core biopsy - horrible. I left in a state of shock and returned a few days later to hear they were shocked too as it was malignant. Then to surgeon who wanted more biopsies as there was another area-in duct. This meant it had to be a mastectomy as the area was too large. The surgeon also decided to do a sentinel node biopsy. Took two nodes and found it had reached the first. Mastectomy was done well, no pain after and felt good. The cancer was HER2 so aggressive. Just over two weeks ago I had my first chemo of docetaxel and cyclophosphamide which went ok. Side effects of course but not too bad, until I got increasingly breathless. Oncologist wanted me in hospital to check, everything was ok so just my reaction to it. Following blood test showed my WBC was very low. Today it's back to oncologist. I'm supposed to have Herceptin too but we are still waiting for it to arrive, which I find frustrating. Will find out today. Also have developed a very sore jaw as I must be clenching it all the time. Hair is dropping rapidly and have my beanies and scarves ready, also going to a look good feel better workshop next week which will hopefully cheer me up.
Sorry if too long, but that's barely scratched the surface!
18 Replies
- Thanks! I was scared by the her2 diagnosis but feel more positive with the Herceptin treatment. My mum had breast cancer too but not the same as me. A friend is coming with me to the workshop and I'm looking forward to it; day before next treatment. Reckon my neutrophils are pretty pathetic, all gone in one dose! Hopefully this granulocyte injection will help and not give too much bine pain. My friend is keen on sorting me out with a wig...we shall see! X
look forward to meeting you!!
- Yes, going to Narara. See you there!
having my chemo at gosford hospital. are you going to Narara? monday? be great to see you there! I believe the look good feel better workshops are fun.
Marg
Hi Sarah, I had 6 doses of the same chemo as you & have just finshed 12 months of Herceptin. I didn't have much trouble with either except my first lot of chemo I ended up in hospital for a week as my neurofills were right down. When I went back to my oncologist she lowered my dose of chemo & it was a lot easier from then on in. I travelled from the coast to sydney to ahve all my treatment as this is my 3rd lot of bc & as we only moved to the coast 2years ago I thought it better to stick my my docs down there. Anyway enough rambling from me I hope it remains not too bad for you & I wish you a speedy recovery. I also did the look good feel good & it was a wondeful day with lovely ladies. PS I brought myself a flame red wig...way out of character but gave me so much confidence when I wore it I sort of miss it now...maybe I'll wear it for fun again some day.
Hi Sarah, I had 6 doses of the same chemo as you & have just finshed 12 months of Herceptin. I didn't have much trouble with either except my first lot of chemo I ended up in hospital for a week as my neurofills were right down. When I went back to my oncologist she lowered my dose of chemo & it was a lot easier from then on in. I travelled from the coast to sydney to ahve all my treatment as this is my 3rd lot of bc & as we only moved to the coast 2years ago I thought it better to stick my my docs down there. Anyway enough rambling from me I hope it remains not too bad for you & I wish you a speedy recovery. I also did the look good feel good & it was a wondeful day with lovely ladies. PS I brought myself a flame red wig...way out of character but gave me so much confidence when I wore it I sort of miss it now...maybe I'll wear it for fun again some day.
- I had my first chemo on the 15th too, at north Gosford. Maybe I will see you at workshop?
- I had my first chemo on the 15th too, at north Gosford. Maybe I will see you at workshop?
Hi
You are having the same chemo drugs as me - had my first one on the 15/4/14 and the fatigue has been the worst. I have managed to work most of the time which is great. I had a bad mouth ulcer for a few days despite washing mouth out with biotene mouthwash and salt washes. I am starting to lose lots of my hair too. time for my hairdresser to shave it off its going everywhere! I have my turbans ready, going to the look good feel better workshop on monday which should be great and then get hit up again with chemo on tuesday. Off for a short appointment with my oncologist tomorrow to see how I am going. Can't wait til its over but its been going ok.
Hi
You are having the same chemo drugs as me - had my first one on the 15/4/14 and the fatigue has been the worst. I have managed to work most of the time which is great. I had a bad mouth ulcer for a few days despite washing mouth out with biotene mouthwash and salt washes. I am starting to lose lots of my hair too. time for my hairdresser to shave it off its going everywhere! I have my turbans ready, going to the look good feel better workshop on monday which should be great and then get hit up again with chemo on tuesday. Off for a short appointment with my oncologist tomorrow to see how I am going. Can't wait til its over but its been going ok.
