Forum Discussion

SoldierCrab's avatar
9 years ago

Are you a male diagnosed with Breast Cancer on the online forum

Are you a male diagnosed with Breast Cancer on the online forum? 

  • Do you need or want a specific group within the forum to be able to discuss male related issues from your diagnosis or treatment? 
  • Do you feel comfortable discussing on the general forum with the ladies who at this stage dominate (in a nice way) the forum? 
  • How can we on the Forum make men feel included and heard within the forums? 
I am sure there are many other emotions for a male diagnosed with BC 

19 Replies

  • yes my geneticist has said that also.... I have a strong family background of Prostrate cancers in both sides .... but I am the first and only at this stage female with BC

  • Hi @"Soldier Crab" @socoda @Pauline_BCNA @traveltext
    The messages of inclusiveness are welcomed and reassuring
    For those wanting to know more about MBC there are some fantastic resources developed recently by @Pauline_BCNA in consultation with MBC advocates. BCNA have a plan that will go a long way to answering your concerns and providing the support we need. Personally I have been very fortunate to be part of the process and included in some ground breaking sessions. Myself and @traveltext are attending the upcoming BCNA Summit as MBC representatives and it will a great opportunity to build relationships and continue to get the message out that breast cancer doesn't discriminate...it's more than 1 in 8. 
    The biggest challenge is improving education and awareness in the community to ensure Men understand they can be affected, what to look out for, practice good self examination techniques, and if concerned seek medical review asap. 
    Unfortunately the prevelance of pink only reinforces the myth that it is a female disease and we have been advocating for a splash of blue to be added somewhere that might provide the catalyst that starts a conversation in the community like "what is that splash of blue all about?"
    By and large MBC diagnoses and treatments are currently the same for men as they are for women, but recent overseas research has indicated there are some differences for MBC and we are hopeful that future treatments may be adapted to improve outcomes.
    If you check out the BCNA website there is a great deal of updated information on MBC under the heading "Understanding breast cancer" link.
    Thanks again for your support
    Rob
  • There is evidence of a link between genetics of prostate cancer and breast cancer too. I am first hand evidence as my dad is undergoing mets prostate cancer treatment and its the same docetaxel chemo as I had for breast cancer last year, although I also had cyclophosphamide as well. Dad also gets the hot flushes that I do lol. https://www.sciencedaily.com/releases/2004/05/040503054534.htm
  • hi @"Chester80$$"
     
    Some thoughts are can BCNA run a Information forum maybe where it is Only for Men and their supporters with BC ? 

    All the forums are women based that I know of.... 

    I just feel that you blokes need support and I am very inclusive orientated... 

    Blokes with Breast Cancer ? would be more masculine...  Dudes fighting BC ? 

    I am completely ignorant on BC in men tell me is it more prominent in a specific age group ? Do you suffer the same types as women or are they different again ? 

    How do we learn to promote it for men to be self aware of their our Breasts...

    I hope I am not too overwhelming Rob, I just want to understand from a male perspective and reach out being inclusive. 

    Alice aka Soldier Crab 

  • I have never seen that video @Cosette_BCNA
     where does it play on TV ?  in Cinemas? 
    sorry I am not a big TV fan so I don't watch very often and often it is stuff I record then fast forward through ads. 


  • How about for a start making the name of the men's forum more masculine such as Men's Chest Cancer. Might appeal more? What do others think?
  • Prior to the launch of the new website there was an MBC forum with only a couple of active men and low activity. Some of the MBC advocates within the BCNA family are thinking about some strategies to capture the ~150 diagnosed each year into a robust cohort but there are numerous challenges.
    Having MBC within a sea of pink can be difficult for men, many of whom feel their masculinity/virility has taken a big hit and they don't really want to talk about it. BCNA have been hugely supportive and we are not giving up and having the forum might help, but as they say "you can lead a horse to water but you can't make it drink"
    If others want to offer suggestions and want to contribute to the conversation please join in.
    Rob

  • @"Soldier Crab", you are such a thoughtful person.

    We do have a couple of men in the online network and perhaps we have more men quietly reading. In the past, we did have an online network group for men diagnosed with breast cancer, but it was not active, for a number of reasons that we understand. 

    We are always looking for ways to improve our support for men. We definitely considered how men respond to the "ocean of pink" when we were looking at designing this version of the forum. @Pauline_BCNA has done a lot of work in this space and consulted with some of the men in our community. As a result, we have made changes to the information we send to men diagnosed with breast cancer and we actively look for ways to be more inclusive of men. For example, you might have seen @"Chester80$$" in our videos, like this one:

    https://youtu.be/zUxs6av4ul8

    While there's been slight interest in the idea of an online network group for men diagnosed, there isn't anyone available to lead it. However, if that changes, then we're definitely open to creating one.