Anyone else 'double trouble'?

Hi Martine - yes, it seems we are indeed a rare breed.  I do wonder if I had understood how rare when I was first diagnosed if I too would have opted for mastectomy straight away rather than lumpectomy, but it sounds like your situation was more aggressive than mine as both mine are PR+, ER+ but HR- and grade 1 with no node involvement.  I am an academic so have access to academic and medical literature online and can't help researching recurrence risks for bilateral BC, but the rare nature means small sample sizes and not much research!  
I guess we all live with the fear of recurrence, but like you I want to minimize that risk!
Thanks for connecting and for your story - I hope you are now doing well. Libby