Hi JacJac - thanks for sharing your story - you have highlighted so many of the issues we advocate for (just for context I am the CEO of BCNA). That feels weird to write!
Patrice was wonderful on the program and really delivered the lived experience in such a powerful way - the reality of it all was there for the whole country to see.
You are so right about all the assumptions that exist (still today in breast cancer) it drives me mad! We are also up against many people believing that breast cancer is done and that we need to focus on others - well that is not going to happen on my watch!
We are always wanting to connect with people who are happy to share their experience to help us advocate strongly for change. Here are our Policy Priorities would encourage everyone to read them. If you are keen to talk more and help us advocate then https://www.bcna.org.au/get-in-touch/ is the best way and the right person will be able to connect with you.
Sadly your experience is not the only one. We wont stop until everyone has the best treatment, CARE and SUPPORT.
Really hope we can connect
KP