Forum Discussion

Christina_BCNA's avatar
Christina_BCNA
Community Manager
21 days ago

📣 “My legacy is making it better for people behind me” - together we count metastatic breast cancer

“My legacy is making it better for people behind me” - Lisa Tobin, Consumer Representative for BCNA and living with metastatic breast cancer. Lisa is one of the 20,950 living with metastatic breast cancer (MBC) in Australia - more than double previous estimates.  

Now, it's time to make the numbers count.

👉Sign BCNA's pledge urging state and territory governments to invest in their cancer data registries.

🧑‍🤝‍🧑Check out Channel 9's coverage of this important announcement - It's more than just a number. Being counted means being seen, and being seen is the first step to being properly cared for.  

metastatic

3 Replies

  • arpie's avatar
    arpie
    Member
    20 days ago

    Wishing you all the best with your ongoing treatment, dom32​  .... and I hope you get onto the Omico trial too.  Genomic testing & immunotherapy would appear to be the 'way ahead' for a lot of those with BC.

    hehe, if we are all honest with ourselves, we can all be grumbly (even grumpy) at times .... so don't beat up on yourself too much xx   Yep, being kind is the best way to be xx

    Take care & have a great Xmas/New Year

  • Christina_BCNA's avatar
    Christina_BCNA
    Community Manager
    21 days ago

    Thanks dom32​ it’s great to see how you’re leaning into research and relationships with such purpose. Fingers crossed for the Omico trial - genomic testing sounds like an exciting step forward! 

  • dom32's avatar
    dom32
    Member
    21 days ago

    Hi Christina,

    Good on you for choosing to commit to helping others, focusing on what you can do. Inspirational.

    I too want to do my bit to push MBC research forward, that others might benefit as I am benefiting from those who have gone before. I'm immensely grateful for where we are as a nation, and excited for what is yet to come. Diagnosed with MBC in early January this year, I let my treating oncologist know I was keen to participate in research and trials. Since then through BCNA I have completed a few surveys and am participating in the Optimising Care trial (exercise and nutrition), it has already been helpful. More importantly it helps me to feel I am leaning into my goals. I am fortunate that the side effects of the drugs so far have been manageable (more so than the 10 months of Early Breast Cancer treatment 9 years ago), and I have enough energy to put into life and living well. My oncologist has put my name forward for the Omico trial, and I am hopeful that the genomic testing will identify new drugs that are specific to my tumors. We live in exciting times. 

    My other goal is to lean into relationships, accept people for who they are and show kindness to anyone I meet. A bit of a stretch on difficult (grumbly) days, but there are very many good days too. 

    Thanks BCNA,

    Dom32