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BM2026's avatar
BM2026
New member
5 days ago

LCIS on 1st year

Hi, last year in Mar25 I was diagnosed with a DCIS, I have dense (c) breasts.  In Apr25 I had a lumpectomy and then 2 weeks of radiation.  My 1st year review was Mar26 and now I have been diagnosed with an LCIS - pleomorphic.  My concern is that the 1st report says L high-grade DCIS - HR immunohistochemistry is in progress a supplementary report will follow - that says Oestrogen receptor (ER) strong nuclear express in 60% of cells, PR is -negative <1% - however, assessment is hampered by the limited extent of the intraductal proliferation. E-cadherin immunohistochemistry pathology is underway to confirm a ductal phenotype, a supplementary report will follow.

On the following report conclusion is LB, stereotactic biopsis, stromal microcalcifications and focal in situ carcinoma, features favour plemorphic lobular carcinoma LCIS over DCIS

My surgeon advised if it was the DCIS he would be recommending mastectomy but as it is LCIS then lumpectomy (same as last year) but no radiation.

I have since had an MRI so we can be more conclusive but my concern is the rate at which I have had a LCIS pleomorphic grow.  I am considering a second opinion, has anyone else been in this situation. 

I am 62years old and other than the above I am generally healthy.  I am seriously considering a mastectomy given my dense breast, what if something is missed, I don't want to keep doing this each year.

After reading many of your journeys I appreciate that I am possibly one of the lucky ones but at the moment very confused.

B 

treatment decisions

2 Replies

  • Suki's avatar
    Suki
    Member
    1 day ago

    Hi BM2026​ 

    I was diagnosed with Classical LCIS and widespread calcifications.  I also had very dense breasts.

    For the LCIS, I was put on monitoring with annual mammograms.  I was also having periodical ultrasounds.  

    At 47 years old, I was diagnosed with invasive ductal cancer (not lobular) - HER2+ and HR+.  The diagnosis happened because I felt a lump some 11 months after a clear mammogram and 8 months after a clear ultrasound.  I ended up having chemo, surgery, targeted therapy and now hormone therapy.

    Hopefully this doesn't scare you. But getting a second opinion is an excellent idea - there is no harm in it.

    All the best and feel free to ask any questions xx

  • Christina_BCNA's avatar
    Christina_BCNA
    Community Manager
    1 day ago

    Hi BM2026​ , I’m really glad you reached out and shared all of this. It’s completely understandable that you’re feeling confused and unsettled right now. You’ve had a lot happen in a relatively short period of time, and trying to make sense of different pathology reports and treatment options can be overwhelming. Your concerns about the rate of change, your dense breast tissue, and the possibility of something being missed are all very real and important considerations. Many people in similar situations do think carefully about whether they want ongoing monitoring versus a more definitive surgical option like a mastectomy. Remember that there is no “right” answer, only what feels safest and most manageable for you❤️ 

    Seeking a second opinion sounds like a really sensible and empowering next step here. Most importantly, be gentle with yourself, feeling confused doesn’t always mean you’re not coping well; it means you’re processing something complex and important. If there is anyting we can help to chat with you about, please ring our Helpline on 1800 500 258.