The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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consultation for DCIS - private or public?","id":"message:110750","revisionNum":1,"repliesCount":7,"author":{"__ref":"User:user:23218"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:110750"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:110750"},"body@stripHtml({\"truncateLength\":200})":"I was diagnosed a few weeks ago with low-grade DCIS, showing up in 2 clusters of microcalcifications on my right friedegg. All quite sudden given I'm 42 and was expecting to be chased away from Br...","body@stringLength":"1927","rawBody":"I was diagnosed a few weeks ago with low-grade DCIS, showing up in 2 clusters of microcalcifications on my right friedegg.
All quite sudden given I'm 42 and was expecting to be chased away from BreastScreen NSW telling me it was cysts, which has happened to me previously. Instead, I got the works (mammo, ultrasound, biopsy wootwoot), with the diagnosing doctor recommending a mastectomy because: 1. I'm small (barely a B cup) - so a wide-local excision would leave a \"poor cosmetic result\" 2. I have a family history of bad boobies - my grandma had a mastectomy in her late-50s, and recently 2 of my cousins (also in their 40s) have had surgery and chemo related to breast cancer.
So while I'm grateful that it's been spotted early, I'm still reeling from the recommendation of \"just-in-case\" breast removal, and wondering about \"wait-and-see\" DCIS trials that are happening in Europe and the US... In any case, when my logical brain can function it's telling me to chill the hell out, and just go see a practising surgeon to get more info.
My question: I don't have private health insurance due to just moving back home to Sydney, but I am prepared to cover some of the consult costs myself (probably not the surgery... if it's needed) if it's better to meet with a doctor at their own practice. The doctor I'm thinking of seeing (Cindy Mak) operates out of her own consult rooms and the RPA Lifehouse. Does anyone know if it makes any difference which consult rooms you start with? Should I save myself a couple hundred and blow it on much-needed anti-anti-cancer-diet supplies of wine and chocolate?
And any feedback on Cindy Mak or Belinda Chan?
Thanks in advance ladies. <3 And sorry if I sound flippant, I'm actually feeling quite blue after starting all this research and need to gee myself up. ","kudosSumWeight":1,"postTime":"2021-04-25T21:50:24.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:anxiety","text":"anxiety","time":"2025-03-25T05:01:46.886-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:dcis","text":"dcis","time":"2025-03-25T05:01:41.715-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:diagnosis","text":"diagnosis","time":"2025-03-25T05:02:06.535-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDQ","node":{"__typename":"Tag","id":"tag:mastectomy","text":"mastectomy","time":"2025-03-25T05:01:41.271-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:110750_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":415},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"I was diagnosed a few weeks ago with low-grade DCIS, showing up in 2 clusters of microcalcifications on my right friedegg.
All quite sudden given I'm 42 and was expecting to be chased away from BreastScreen NSW telling me it was cysts, which has happened to me previously. Instead, I got the works (mammo, ultrasound, biopsy wootwoot), with the diagnosing doctor recommending a mastectomy because: 1. I'm small (barely a B cup) - so a wide-local excision would leave a \"poor cosmetic result\" 2. I have a family history of bad boobies - my grandma had a mastectomy in her late-50s, and recently 2 of my cousins (also in their 40s) have had surgery and chemo related to breast cancer.
So while I'm grateful that it's been spotted early, I'm still reeling from the recommendation of \"just-in-case\" breast removal, and wondering about \"wait-and-see\" DCIS trials that are happening in Europe and the US... In any case, when my logical brain can function it's telling me to chill the hell out, and just go see a practising surgeon to get more info.
My question: I don't have private health insurance due to just moving back home to Sydney, but I am prepared to cover some of the consult costs myself (probably not the surgery... if it's needed) if it's better to meet with a doctor at their own practice. The doctor I'm thinking of seeing (Cindy Mak) operates out of her own consult rooms and the RPA Lifehouse. Does anyone know if it makes any difference which consult rooms you start with? Should I save myself a couple hundred and blow it on much-needed anti-anti-cancer-diet supplies of wine and chocolate?
And any feedback on Cindy Mak or Belinda Chan?
Thanks in advance ladies. <3 And sorry if I sound flippant, I'm actually feeling quite blue after starting all this research and need to gee myself up. ","customFields":[]},"Conversation:conversation:110750":{"__typename":"Conversation","id":"conversation:110750","solved":false,"topic":{"__ref":"ForumTopicMessage:message:110750"},"lastPostingActivityTime":"2021-05-08T12:09:56.000-07:00","lastPostTime":"2021-05-08T12:09:56.000-07:00","unreadReplyCount":7,"isSubscribed":false},"ModerationData:moderation_data:110750":{"__typename":"ModerationData","id":"moderation_data:110750","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:110750_1":{"__typename":"Revision","id":"revision:110750_1","lastEditTime":"2021-04-25T21:50:24.000-07:00"},"ForumReplyMessage:message:110754":{"__typename":"ForumReplyMessage","id":"message:110754","conversation":{"__ref":"Conversation:conversation:110750"},"author":{"__ref":"User:user:23153"},"revisionNum":1,"uid":110754,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"subject":"Re: First consultation for DCIS - private or public?","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:110754"},"parent":{"__ref":"ForumTopicMessage:message:110750"},"body":"I have top private health cover but they only covered $250 of my $6000 private surgeons bill for lumpectomy. I think I was almost more shocked by that than the diagnosis!! Medicare covered $750. The private health did cover the day surgery hospital costs which would have been around $1400 I think.
Having said that, once I adjusted my mind to the huge out of pocket fees, I’m glad I went private. My surgeon saw me within 24 hours of suspect report, she got clear margins and I think a good cosmetic result too.
I guess the point is that it didnt make much difference to the cost that I had insurance.
","body@stringLength":"668","rawBody":"I have top private health cover but they only covered $250 of my $6000 private surgeons bill for lumpectomy. I think I was almost more shocked by that than the diagnosis!! Medicare covered $750. The private health did cover the day surgery hospital costs which would have been around $1400 I think.
Having said that, once I adjusted my mind to the huge out of pocket fees, I’m glad I went private. My surgeon saw me within 24 hours of suspect report, she got clear margins and I think a good cosmetic result too.
I guess the point is that it didnt make much difference to the cost that I had insurance.
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Didn't expect there would be so many of you! Didn't expect to be here - but here we are! 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