The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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life","id":"message:22453","revisionNum":1,"repliesCount":9,"author":{"__ref":"User:user:20489"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:22453"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:22453"},"body@stripHtml({\"truncateLength\":200})":"It has really been a challenging 2 months for me and my life is changing so fast. I am 47 and was diagnosed with a 1 cm DCIS, end of October. Had a lumpectomy and a re-excision in November, No micr...","body@stringLength":"1690","rawBody":"It has really been a challenging 2 months for me and my life is changing so fast.
I am 47 and was diagnosed with a 1 cm DCIS, end of October. Had a lumpectomy and a re-excision in November, No micro invasion. BS then referred me to RT. My gut feeling is to skip RT and have bi-lat Mastectomy due to family history of bc. I met up with a PS to discuss reconstruction Also met up with the radiologist oncologist. My mind is just spinning because I was afraid that I was making too drastic a decision to have bi-lat mx. I think I was less scared of having a mx compared to making a wrong decision.
Fast forward and 2 days ago, my genetic test came back positive for BRCA 2 abnormality. This now takes the decision out of my hands and I will have a bi-lat mx for sure. I am surprisingly relieved that I now have certainty that a mx will not be a wrong decision. But I am now sad and worried if I passed this terrible gene to my kids. They are currently too young for testing.
Now my mind is also filled with making plans for more surgery to remove my ovaries and tubes. And I am reading up about all the terrible side-effects which I will have when my body becomes suddenly menopausal.
On top of that, due to my genes, I have increased risk of pancreatic cancer which is difficult to screen and is normally found out too late.
It is funny how one’s life can change in a blink of an eye.
We really must live our lives everyday like it is the last. Treasure every moment. Don’t waste time being angry or negative or cross. Count our blessings and look for the silver lining behind every cloud.
","kudosSumWeight":0,"postTime":"2017-12-08T04:11:25.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:BRCA1-BRCA2","text":"BRCA1-BRCA2","time":"2025-03-25T05:01:48.624-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:dcis","text":"dcis","time":"2025-03-25T05:01:41.715-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:emotions","text":"emotions","time":"2025-03-25T05:01:41.462-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDQ","node":{"__typename":"Tag","id":"tag:genetic-testing","text":"genetic-testing","time":"2025-03-25T05:01:42.514-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDU","node":{"__typename":"Tag","id":"tag:mastectomy","text":"mastectomy","time":"2025-03-25T05:01:41.271-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:22453_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":261},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"It has really been a challenging 2 months for me and my life is changing so fast.
I am 47 and was diagnosed with a 1 cm DCIS, end of October. Had a lumpectomy and a re-excision in November, No micro invasion. BS then referred me to RT. My gut feeling is to skip RT and have bi-lat Mastectomy due to family history of bc. I met up with a PS to discuss reconstruction Also met up with the radiologist oncologist. My mind is just spinning because I was afraid that I was making too drastic a decision to have bi-lat mx. I think I was less scared of having a mx compared to making a wrong decision.
Fast forward and 2 days ago, my genetic test came back positive for BRCA 2 abnormality. This now takes the decision out of my hands and I will have a bi-lat mx for sure. I am surprisingly relieved that I now have certainty that a mx will not be a wrong decision. But I am now sad and worried if I passed this terrible gene to my kids. They are currently too young for testing.
Now my mind is also filled with making plans for more surgery to remove my ovaries and tubes. And I am reading up about all the terrible side-effects which I will have when my body becomes suddenly menopausal.
On top of that, due to my genes, I have increased risk of pancreatic cancer which is difficult to screen and is normally found out too late.
It is funny how one’s life can change in a blink of an eye.
We really must live our lives everyday like it is the last. Treasure every moment. Don’t waste time being angry or negative or cross. Count our blessings and look for the silver lining behind every cloud.
"},"Conversation:conversation:22453":{"__typename":"Conversation","id":"conversation:22453","solved":false,"topic":{"__ref":"ForumTopicMessage:message:22453"},"lastPostingActivityTime":"2018-01-12T01:20:41.000-08:00","lastPostTime":"2018-01-12T01:20:41.000-08:00","unreadReplyCount":9,"isSubscribed":false},"ModerationData:moderation_data:22453":{"__typename":"ModerationData","id":"moderation_data:22453","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:22453_1":{"__typename":"Revision","id":"revision:22453_1","lastEditTime":"2017-12-08T04:11:25.000-08:00"},"ForumReplyMessage:message:22458":{"__typename":"ForumReplyMessage","id":"message:22458","conversation":{"__ref":"Conversation:conversation:22453"},"author":{"__ref":"User:user:20642"},"revisionNum":1,"uid":22458,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"subject":"Re: Changing life","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:22458"},"parent":{"__ref":"ForumTopicMessage:message:22453"},"body":"I am new to the bcna site and was trying to find more information about DCIS when I read this post.
I am 49 and was diagnosed with DCIS in 2015 when I found a big lump on my left breast. I had a nipple sparing mastectomy as the tumor was big (4cm) and my breast very small. I was told there was no need of any other treatment apart from surgery and thought I'd have to worry only about the right breast.
Last Dec I found another lump close to my nipple during my regular annual checkup and had another surgery on the same breast I had previously had the mastectomy.
This time, the surgeon recommended either radiotherapy or hormone therapy. I'm thinking in doing radiotherapy and avoid hormone treatment as the side effects are not nice.
Just make sure, you continue doing regular checks as there might be recurrences even after mastectomy. The chances are very low 1-2%, but as you can see, it happens.
As you said, one's life can change in a blink of eyes, but it's important to keep calm and deal with things as it comes. I live in the present and try not to overthink about the future. You must have some headspace. ","body@stringLength":"1198","rawBody":"I am new to the bcna site and was trying to find more information about DCIS when I read this post.
I am 49 and was diagnosed with DCIS in 2015 when I found a big lump on my left breast. I had a nipple sparing mastectomy as the tumor was big (4cm) and my breast very small. I was told there was no need of any other treatment apart from surgery and thought I'd have to worry only about the right breast.
Last Dec I found another lump close to my nipple during my regular annual checkup and had another surgery on the same breast I had previously had the mastectomy.
This time, the surgeon recommended either radiotherapy or hormone therapy. I'm thinking in doing radiotherapy and avoid hormone treatment as the side effects are not nice.
Just make sure, you continue doing regular checks as there might be recurrences even after mastectomy. The chances are very low 1-2%, but as you can see, it happens.
As you said, one's life can change in a blink of eyes, but it's important to keep calm and deal with things as it comes. I live in the present and try not to overthink about the future. You must have some headspace. 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