What research should we be doing?
Hello BCNA community! This is my first post. I'm a scientist working on breast cancer and I was looking through some of the threads here and it strikes me that the issues we scientists think are the i...
Forum Discussion
@wingman,
I have stage 4 mets cancer, done the 6 months chemo, bilateral mastectomy ,off to radio on chest and hip area next week for 5/6 weeks , already on crappy Tamoxifen and Xgeva .
Still no one will tell me a full treatment path, a cure would be great and we are all putting our faith that all the crap we go through gets noted and improved medication that don't force early menopause on, that the medication doesn't have worse side effects that the original cancer symptoms that are ongoing and seem to mutate from week to week.
Pain relief that is available overseas needs to get adopted here ( medicinal hemp) , I am lucky that while just turned 50 my kids are grown and my husband is taking the financial burden on solely while I go through treatment, but what is the long term outlook is very unknown as living with mets is the roll of a dice how long you have or how the cancer responds , my one is resistive to chemo , so a bit of research into why that is would be great.
Reports even debunked research needs to be available , while it may not be liable for the majority , the individual that it may help never hears of it, or the treatment is deleted as not been beneficial enough.
I'm sure you will hear a lot more from a lot of us , welcome to the nut house .
Cheers
I have stage 4 mets cancer, done the 6 months chemo, bilateral mastectomy ,off to radio on chest and hip area next week for 5/6 weeks , already on crappy Tamoxifen and Xgeva .
Still no one will tell me a full treatment path, a cure would be great and we are all putting our faith that all the crap we go through gets noted and improved medication that don't force early menopause on, that the medication doesn't have worse side effects that the original cancer symptoms that are ongoing and seem to mutate from week to week.
Pain relief that is available overseas needs to get adopted here ( medicinal hemp) , I am lucky that while just turned 50 my kids are grown and my husband is taking the financial burden on solely while I go through treatment, but what is the long term outlook is very unknown as living with mets is the roll of a dice how long you have or how the cancer responds , my one is resistive to chemo , so a bit of research into why that is would be great.
Reports even debunked research needs to be available , while it may not be liable for the majority , the individual that it may help never hears of it, or the treatment is deleted as not been beneficial enough.
I'm sure you will hear a lot more from a lot of us , welcome to the nut house .
Cheers