What research should we be doing?
Hello BCNA community! This is my first post. I'm a scientist working on breast cancer and I was looking through some of the threads here and it strikes me that the issues we scientists think are the i...
Forum Discussion
Hello Wingman. Well done on finding your way to this underestimated superb hive mind!
Here's my two cents worth: I'm not Stage 4 but constantly hear that Stage 4, metastatic cancer, does not get enough of the research pie. I know a cure is the holy grail, but some people seem to live longer with mets than others. Why do some people's breast cancer recur as metastatic and other's don't? Can we get to a point where we can die 'with' this disease rather than 'from' it, like HIV?
From a personal point of view, I'd like some research done into how to lessen the side effects of aromatase inhibitors (or develop new and better ones!), and how to lessen and mitigate the effects of Cancer Related Cognitive Impairment. From my own experience and from reading about other's here, too often our concerns are dismissed, or met with little more than Pity Face and a shrug. Survivorship is hard enough without managing difficult ongoing side effects for possibly up to a decade or beyond.
Please please please find some way to help the nuclear grade hot flushes that you get from cancer treatment putting you into menopause. You can't take hormones to help when your cancer feeds on them...
Thank you so much for asking! If I think of any more I'll get back to you! Kate
Here's my two cents worth: I'm not Stage 4 but constantly hear that Stage 4, metastatic cancer, does not get enough of the research pie. I know a cure is the holy grail, but some people seem to live longer with mets than others. Why do some people's breast cancer recur as metastatic and other's don't? Can we get to a point where we can die 'with' this disease rather than 'from' it, like HIV?
From a personal point of view, I'd like some research done into how to lessen the side effects of aromatase inhibitors (or develop new and better ones!), and how to lessen and mitigate the effects of Cancer Related Cognitive Impairment. From my own experience and from reading about other's here, too often our concerns are dismissed, or met with little more than Pity Face and a shrug. Survivorship is hard enough without managing difficult ongoing side effects for possibly up to a decade or beyond.
Please please please find some way to help the nuclear grade hot flushes that you get from cancer treatment putting you into menopause. You can't take hormones to help when your cancer feeds on them...
Thank you so much for asking! If I think of any more I'll get back to you! Kate