Forum Discussion
primek
8 years agoMember
Welcome to the site and sorry you have had to join us. My sister has had a journey similar to yours except she had been away supporting my brothers wife with end stage endometrial cancer not a holiday, sadly. I felt horrible asking her not to stay long after the funeral which was away as I really needed her, I had done the biopsy by myself and at that stage my husband was still doing the denial / stay positive thing that it might not be cancer. I had a horrendous family history. My Fathers side had multiple sisters who had had bc or ovarian cancer. My sister (from a different father) had breast cancer as did her daughter. Myself, my sister and my brother (all from same Father -now passed) all had genetic testing and we thankfully did not carry the faulty BRAC1 gene that his family had. My half sister with bc and her daughter with bc were tested and no gene found. So sometimes it's just rotten luck.
I know that I just wanted to know so I could get on with it. I was over 50 though so it was different for me. I'd been having mammograms for 10 years and my bc didn't show up. I found mine.
So.....what they recommended for my sisters. Even though no gene to have a consult with a breast surgeon who will review risks and may suggest a different time frame and type of screening and / or preventative tamoxifen. There are many different choices and it doesn't need to be decided now.
My breast surgeon said to me it doesn't matter today if you have the gene or not. ..treatment is the same. So a delay would not matter with results..
I was so thankful to have my sister with me. To drag me out when down. Take me to the pool. Get me to appointments when my husband couldn't and just sit with me and watch TV when that's all I could do during the day. I don't know I could have done it without her.
She is lucky having you there. I know this is daunting for you but just being there is enough. Let her say what she feels and acknowledge those feelings. Never say "just be positive" as sometines you just can't. But...you pick yourself up and keep going. She will become stronger than she ever believed she could be, as will you. Kath x
I know that I just wanted to know so I could get on with it. I was over 50 though so it was different for me. I'd been having mammograms for 10 years and my bc didn't show up. I found mine.
So.....what they recommended for my sisters. Even though no gene to have a consult with a breast surgeon who will review risks and may suggest a different time frame and type of screening and / or preventative tamoxifen. There are many different choices and it doesn't need to be decided now.
My breast surgeon said to me it doesn't matter today if you have the gene or not. ..treatment is the same. So a delay would not matter with results..
I was so thankful to have my sister with me. To drag me out when down. Take me to the pool. Get me to appointments when my husband couldn't and just sit with me and watch TV when that's all I could do during the day. I don't know I could have done it without her.
She is lucky having you there. I know this is daunting for you but just being there is enough. Let her say what she feels and acknowledge those feelings. Never say "just be positive" as sometines you just can't. But...you pick yourself up and keep going. She will become stronger than she ever believed she could be, as will you. Kath x