Forum Discussion
arpie
4 years agoMember
Just adding my previous reply from the Welcome New Members post, for continuity ....
Well done, Aaron @AaryBee for reaching out on behalf of your lovely wife. You will both still be suffering shock from Bianca's diagnosis and the unknowns & uncertainties & emotions that go with it.
You are in the right spot for support and information from those who've gone before ...... That is terrific that you have supportive family & friends. Lean on them - they will want to help you both.
Some great info from @Locksley already xx
Wishing you both all the best with the PET scan results xx. Bianca's medical team will be working on the best plan for her treatment xx
Here is a fairly recent post on members who are triple positive who may be able to help you .... to read up on ....
https://onlinenetwork.bcna.org.au/discussion/23501/triple-positive
Has anyone on the Medical Team mentioned immunotherapy treatment? Herceptin is used with Her2 Positive & there may be other treatments that have been approved, as trials & advancement in treatments are happening all the time. The USA are doing trials using Keytruda too (currently used in Australia on Melanomas and Lung Cancers.) Hopefully Australia starts trialling it sometime soon too.
take care xx
That's just awesome news @AaryBee & Bianca. Onwards & upwards.
Keeping up with Bianca's exercise regime will be terrific for her to have goals - but be ready for those 'off days' when she may not want to get out of bed. Maybe keep all her favourite treats handy, too, to entice her to eat/get fluids ..... even lovely fresh grapes ... anything that she enjoys.
All the best for Bianca's ongoing treatment ..... Take one day at a time - but don't forget to look after YOU as well .... make sure you do take time out for some of your own favourite activities, too, as this wicked disease also impacts you, the carer. xx. It can be difficult tho (I am caring for my Stage 4 husband) and sometimes I find it hard to leave him to do 'my stuff' ... but I do need to have my own time out now & then.
take care, both of you xx
Well done, Aaron @AaryBee for reaching out on behalf of your lovely wife. You will both still be suffering shock from Bianca's diagnosis and the unknowns & uncertainties & emotions that go with it.
You are in the right spot for support and information from those who've gone before ...... That is terrific that you have supportive family & friends. Lean on them - they will want to help you both.
Some great info from @Locksley already xx
Wishing you both all the best with the PET scan results xx. Bianca's medical team will be working on the best plan for her treatment xx
Here is a fairly recent post on members who are triple positive who may be able to help you .... to read up on ....
https://onlinenetwork.bcna.org.au/discussion/23501/triple-positive
Has anyone on the Medical Team mentioned immunotherapy treatment? Herceptin is used with Her2 Positive & there may be other treatments that have been approved, as trials & advancement in treatments are happening all the time. The USA are doing trials using Keytruda too (currently used in Australia on Melanomas and Lung Cancers.) Hopefully Australia starts trialling it sometime soon too.
take care xx
That's just awesome news @AaryBee & Bianca. Onwards & upwards.
Keeping up with Bianca's exercise regime will be terrific for her to have goals - but be ready for those 'off days' when she may not want to get out of bed. Maybe keep all her favourite treats handy, too, to entice her to eat/get fluids ..... even lovely fresh grapes ... anything that she enjoys.
All the best for Bianca's ongoing treatment ..... Take one day at a time - but don't forget to look after YOU as well .... make sure you do take time out for some of your own favourite activities, too, as this wicked disease also impacts you, the carer. xx. It can be difficult tho (I am caring for my Stage 4 husband) and sometimes I find it hard to leave him to do 'my stuff' ... but I do need to have my own time out now & then.
take care, both of you xx