Forum Discussion

happylittlevegi's avatar
15 years ago

My Story

My partner happened to come accoss an odd bump on my left breast as we were cuddling one night on the couch. No funny business I promise :) It was quite firm, so he insisted I see a doctor about it. I was hormonal and due for my monthlies so thought nothing of it. Two weeks passed my period came and gone and my breast started to ache. I felt the lump and it had grown and formed an odd shape. I called my GP and he couldnt fit me in for another week. My partner had an appointment to get his blood results back in a couple days, so whilst in that appointment I asked the doc if he could have a quick look at my breast. He did, his eyebrows raised, not just because I have outrageously gorgeous breasts :) but because he was alarmed at the size of it. He instantly sent me for an "urgent" ultrasound and three day's later I was told I have a malignant tumour. The same day he sent me off to see a surgeon who said he wanted to do a few more tests to see what we are dealing with. I had a mamogram and core biopsy and had results all in that same week. The prognosis was invacive ductal carcinoma (high grade) and was advised a lumpectomy and sentininel node biopsy was requred immediately, followed by 6 months of intense chemo and 6 wks radiation therapy. I was placed on an urgent waiting list (category 1) however this surgeon couldnt do it till mid november another month and a half away, another lady surgeon was available in two weeks so we opted to see her instead. As we hadnt met her before I requested we meet her in person.  That day I was blown away, I was explained that the lump was quite large (shock 1) and if I was to have it removed immediately I would lose more than half of my breast. It would be deformed and concave (shock 2)and  we would need to wait at least two months before we can start chemo. She immediately thought doing things the other way around, chemo first surgery later. . whilst she dashed out to get the oncologists opinion to this new plan, I was left in shock. I was so upset that the previous surgeon never gave me this option. His words were, "its a nasty one, its not that big but needs to come out, you'd hardly tell after surgery and can still wear your low cut tops." Now this lady told me the complete opposite, it's a large one, i will lose more than half my breast. Hows about we save time and start off with chemo first? Did you know that this particular type (invacive ductal carcinoma) responds very well to chemo? No i did not. In some cases its dissappeared completely with chemo alone. Unbeliveable. Yes we have hope and I dont get to mutate my presious boobie. This was fantastic news we were excited, confused, angry and happy all at the one time. I got to chat to the oncologists that day also and was introduced to a breast care nurse. Everyone had been so helpful so far (other than my first surgeon). I'm so glad I got this surgeon and my oncologists has a very good rep also. I have a great team and have been told that I will be starting my first cycle of chemo next week! I've come on this site so I can find other women in the same situation as I am or people that have been through it themselves and can understand its process and it affects it has on every day living...my worse fear is the chemo treatment. If anyone is able to shed some light would be great. Thanks for reading. Happylittle vegimite over and out... 

15 Replies

  • HI HLV

    Was only thinking about you last night and wondered how you were going.  Yep yep yep, I had the foggy brain and little things would cause me so much confusion.  Then I would panic that I was confused.  My sister would say just ring up and make an appointment (so something or other) and I couldn't think how to find the number, or what I should say when they answered?  Try not to panic (I did) and know that it does pass. 

     

    Like you, I had a allergic reaction to Maxalon (anti nausea) and was very ill for the first chemo only.  The first one was terrible for me too, but the rest were slightly easier and I only had the reaction to the first one only, so hopefully they will get your meds under control and the next 5 will be plain sailing.

    thankyou for letting us know how you are going, I have a friend starting chemo later this month so it is great for others to read some of the side effects (although not pleasant).  I think if you can relate to others, at least you know that it is normal (ish).

    Enjoy your good days and try and get to the beach more, I found wearing sunglasses also helped with the sun and fogginess too.

    Stay strong.

    Tanya

  • Hi ladies thanks for your reassuring responses.

    My first chemo experience wasnt so great, I ended up in hospital 4 days after with a reaction to the dex (steroid) and pramin (anti-nausia). I had a crazy stiff neck, head tilting spazms, blurred vision and difficulting breathing. I was walking around like a drooling zombie. Finally I managed to call the oncology ward and spoke with one of the nurses who said I should have only been taking those meds a few days after chemo, but I was instructed to take them the entire cycle even if I dont need them as its a preventative. Basically was overmedicating myself for 7 days. To cut the long story short I stopped all medications and feel much better for it. I've managed to control the nausia with food and ginger tea. tomorrow is two weeks after my chemo and I'm getting more energy as the days follow. Even went for a 40 min walk the other day, we have some beautiful walks around here (I live near the beach, so I'm spoilt) and I'm hanging to explore more when I have the energy. I had an off day yesterday felt very confused and foggy in the brain. I stood in front of the shower for 20 mins trying to figure out whether I take my shoes or my pants off first. I felt like a dimentia patient. That was a little scary but I keep reminding myself that this is chemo brain, its not forever, one down five more to go and that keeps me going.   If anyone has had any confusion or fog brain in their journey I'd love to hear about it.

    Well this is me signing off for another day.

    Happy little vegimite over & out :)

  • Hey hope everything went well and you are doing ok.    I had six lots of the FEC and found it wasn't as bad as what I thought it would be.  Don't get me wrong I felt pretty average, but I was able to function at least.  Let everyone fuss over you as it will help them deal with all of this and not feel so helpless.  Remember life goes on.

  • Hi HLV

    Hopefully chemo has treated you kindly today and you are now resting.  Thinking of you, now that the first is behind you you at least know what is ahead.

    As I mentioned earlier the first one is the worst.  although the fatique increases  as the treatment goes on.    I was to have FEC, then they changed it to TAC which is similar I think.

    Good luck and rest.

    Tanya

  • Hi HLV

    Well of course you are scared of the sound of chemo.  we all were, you mind thinks of bald sick people and that is very scary.

    I had a mastecomy at the age of 36 because of the size of my tumour, and earlier this year I elected to have my other breast off and reconstruction.

    I did 6 x TAC chemo once every 3 weeks for 24 weeks.  Chemo has come along way in recent years and the anti nausea medication helps.  Yes you will lose your hair (lost mine on day 18).  But there are some great wigs available.  People used to comment on my hair all the time and were really embarassed when I told them it was a wig.  My children were 2 and 4 when I went through chemo but I still took them to school, went out for dinner, to the movies with my husband, holidays and boring stuff like shopping.  Now dont get me wrong I wasn't whistling yippee do out my #$#@  but I had my chemo on a Wednesday and wednesday night I crashed out and slept.  Then I was ok (groggy probably best describes it, like a hangover) until the Sat.  Sat and sun were the worst days then i was up and about doing normal things.  It is doable, it is not fun, but I was surprised that it wasn't as bad as I had imagined.

    There are lots of things you can do/take to help.  anti nausea pills, suck on ice blocks, rest when you are tired and drink red softdrink (that is only my recommendation cause it worked for me, gingerale works too).

    Just ask lots of questions here and you will be well prepared for what is ahead.  Information is power.

    Sorry you had a bad experience with your surgeon. 

    Good luck and feel free to ask ANYTHING.

    Tanya  xx