Forum Discussion

RochelleAnne's avatar
13 years ago

Deep breath!

Hi there,

First time I've ever thought about doing this, so here goes. I'm a 26 year old female with three brothers aged 25, 23 and 20. My mum, 54, was diagnosed with triple negative breast cancer in July last year. She was healthy, and noticed a lump. It turned out to be two tumours with lymph node involvement, including a supraclavicular node. For that reason, it was considered an early stage IV, grade 3.

She had six cycles of dose dense AC followed by another six cycles, a mastectomy and lymph node clearance and then more chemo. She then had five weeks of daily radiotherapy which she finished three weeks ago.

Last week, she got a migraine. Not unusual - she has always had them. But it didn't go away. She went to hospital and a few CT scans later we were told she has six lesions on various parts of her brain that are mets.

The onc confirmed what Google has told me about the poor prognosis for multiple brain mets. She starts ten days of WBRT on Monday. Even so, we're talking about months to live.

I can't quite believe it. Mum is not yet aware of the timeframe, and we're glad about that. She will know soon enough, and the GP/onc have confirmed it's a good thing not to say anything while she's undergiong treatment.

I'm not sure what I'm looking for here... someone to talk to? I'm worried about my Dad, my brothers, how I'm practically meant to function when all I can think about is how I want to be with my mum while she's living and dying. I still need my mum; who stops needing their mum?! How am I meant to say goodbye to her?? My heart is breaking.

15 Replies

  • Hey RochelleWhat a beautiful name for an obviously beautiful person.  My daughter's middle name is Rochelle.Your mum is so lucky to have you in her life as you obviously love her dearly.There is little words to say to help how you are feeling.  I know how hard it is for us, to not know what to do when you have a loved one so ill.  You have taken a very positive step by coming on to BCNA network as we are here to give you support and any advice we can should you need it.  I hope it helps just to know we are here for you.Like lovely MandaMoo said don't give up hope yet precious and just be there for your mum and your family.  I am sure she would want you to be enjoying the time with her the best way you can.  She is so lucky to have so many people around her that love her as you obviously do.Take care and lots of warm and loving hugs coming your way.Lots of love, Mich xoxo
  • There is an Advanced Breast Cancer group on this site but I am not sure if family members can join?  Only those living with ABC would really be helpful in my mind.

    So sorry that you are all having to go through this.....what a horrible time for you!  But please make sure that you spend time with your mum and cherish the moments that you have together.  I hope she still has many many months left in front of her and that she continues fighting through her treatment.

    Best wishes,

    Louise

  • I am so sorry to hear about your mum.  You have come to a good place here for support.

    Brain mets are diffcult but not impossible to treat.  Don't give up hope but yes, keep reality in mind too. Statistics are just statistics - your Mum is your mum - remember that.  Love her, treasure her, be there for her.  She needs you.

    A x