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We always have members looking for support so if yo...","body@stringLength":"2155","rawBody":"Hi all and happy new year to everyone,
Just a reminder if you belong to our group that as it's private the posts don't appear in this main feed. We always have members looking for support so if you haven't been to the group lately please pop over and see if you can offer some words of wisdom. We have some new members who are after some support.
Have you had implants and radiation? We have two members seeking support. One who has already had radiation, and one who needs radiation after surgery with an expander in. We have a query about when to have reconstruction if you have metastatic breast cancer. We have other members as always seeking support as they make their reconstruction decisions. As always we have generous ladies sharing and updating photo stories which is so helpful to others who come behind us. It can be such a confsui9ng time so please pop over to the group if you could offer some words of wisdom or just to say hi.
Here is the link if you would like to pop over or would like to join. If you are new and requesting to join, once you put your request in and leave us a message, myself or one of the other volunteer group leaders should respond and join you up within 24 hours.
Thankyou to our wonderful group of ladies who give support, share their stories and photos. You are all so generous and are a huge help to those who come behind you.
Paula @mum2jj Jane @Jane221 Alex @alexinbrisbane Chris @Chorsell and Louie @LouiseTurner
","kudosSumWeight":2,"postTime":"2018-01-18T00:04:29.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:Reconstruction","text":"Reconstruction","time":"2024-10-22T16:42:44.606-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:169705_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":171},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"Hi all and happy new year to everyone,
Just a reminder if you belong to our group that as it's private the posts don't appear in this main feed. We always have members looking for support so if you haven't been to the group lately please pop over and see if you can offer some words of wisdom. We have some new members who are after some support.
Have you had implants and radiation? We have two members seeking support. One who has already had radiation, and one who needs radiation after surgery with an expander in. We have a query about when to have reconstruction if you have metastatic breast cancer. We have other members as always seeking support as they make their reconstruction decisions. As always we have generous ladies sharing and updating photo stories which is so helpful to others who come behind us. It can be such a confsui9ng time so please pop over to the group if you could offer some words of wisdom or just to say hi.
Here is the link if you would like to pop over or would like to join. If you are new and requesting to join, once you put your request in and leave us a message, myself or one of the other volunteer group leaders should respond and join you up within 24 hours.
Thankyou to our wonderful group of ladies who give support, share their stories and photos. You are all so generous and are a huge help to those who come behind you.
Paula @mum2jj Jane @Jane221 Alex @alexinbrisbane Chris @Chorsell and Louie @LouiseTurner
","customFields":[]},"Conversation:conversation:169705":{"__typename":"Conversation","id":"conversation:169705","solved":false,"topic":{"__ref":"ForumTopicMessage:message:169705"},"lastPostingActivityTime":"2018-01-21T15:36:01.000-08:00","lastPostTime":"2018-01-21T15:36:01.000-08:00","unreadReplyCount":14,"isSubscribed":false},"ModerationData:moderation_data:169705":{"__typename":"ModerationData","id":"moderation_data:169705","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:169705_1":{"__typename":"Revision","id":"revision:169705_1","lastEditTime":"2018-01-18T00:04:29.000-08:00"},"ForumReplyMessage:message:169706":{"__typename":"ForumReplyMessage","id":"message:169706","conversation":{"__ref":"Conversation:conversation:169705"},"author":{"__ref":"User:user:15050"},"revisionNum":1,"uid":169706,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:breast-reconstruction"},"subject":"Re: What's happening in our choosing breast reconstruction group","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:169706"},"parent":{"__ref":"ForumTopicMessage:message:169705"},"body":"THANK YOU VERY MUCH TO Paula @mum2jj, Jane @Jane221, Alex @alexinbrisbane, Chris @Chorsell ; and Louie @LouiseTurner FOR ALL THE WORK YOU DO FOR ALL OF US. We appreciate the time and effort you go to on our behalf. Summer <3 ","body@stringLength":"978","rawBody":"THANK YOU VERY MUCH TO Paula @mum2jj, Jane @Jane221, Alex @alexinbrisbane, Chris @Chorsell ; and Louie @LouiseTurner FOR ALL THE WORK YOU DO FOR ALL OF US. We appreciate the time and effort you go to on our behalf. Summer <3 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Accept to continue or {url} it directly on the provider's site.","buttonTitle":"Accept","urlText":"watch"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/users/UserAvatar-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/users/UserAvatar-1742938040000","value":{"altText":"{login}'s avatar","altTextGeneric":"User's avatar"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/ranks/UserRankLabel-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/ranks/UserRankLabel-1742938040000","value":{"altTitle":"Icon for {rankName} rank"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/nodes/NodeIcon-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/nodes/NodeIcon-1742938040000","value":{"contentType":"Content Type {style, select, FORUM {Forum} BLOG {Blog} TKB {Knowledge Base} IDEA {Ideas} OCCASION {Events} other {}} icon"},"localOverride":false},"QueryVariables:ReplyList:message:193458:1":{"__typename":"QueryVariables","id":"ReplyList:message:193458:1","value":{"id":"message:193458","first":10,"sorts":{"postTime":{"direction":"DESC"}},"repliesFirst":3,"repliesFirstDepthThree":1,"repliesSorts":{"postTime":{"direction":"DESC"}},"useAvatar":true,"useAuthorLogin":true,"useAuthorRank":true,"useBody":true,"useKudosCount":true,"useTimeToRead":false,"useMedia":false,"useReadOnlyIcon":false,"useRepliesCount":true,"useSearchSnippet":false,"useAcceptedSolutionButton":true,"useSolvedBadge":false,"useAttachments":false,"attachmentsFirst":5,"useTags":false,"useNodeAncestors":false,"useUserHoverCard":false,"useNodeHoverCard":false,"useModerationStatus":true,"usePreviewSubjectModal":false,"useMessageStatus":true}},"CachedAsset:text:en_US-components/tags/TagView/TagViewChip-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/tags/TagView/TagViewChip-1742938040000","value":{"tagLabelName":"Tag name {tagName}"},"localOverride":false},"ForumReplyMessage:message:193458":{"__typename":"ForumReplyMessage","id":"message:193458","customFields":[],"revisionNum":1,"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"author":{"__ref":"User:user:22343"},"uid":193458,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:193454"},"subject":"Re: Ki67 results versus results from oncotype, etc tests","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:193458"},"body":"Hi @StrongCoffee, I've messaged you privately with my stats
See https://www.bcna.org.au/news/2020/02/oncotype-dx-again-rejected-for-medicare-subsidy/ “MSAC advised the Minister for Health that the evidence presented for Oncotype DX did not give the Committee confidence that the test would identify those patients who could safely avoid chemotherapy or those patients who would benefit from adding chemotherapy,”
However, my oncologist seemed to think the test is reliable, planned my treatment base on it, and said they would offer it to everyone if they could. (Please note they did not inform me of its existence - I was booked in for chemo - I only knew about it because my clever surgeon suggested it). It's certainly not a clear-cut, resounding vote of confidence, but I think I'm glad I skipped Chemo. Time will tell. It's been hard enough without chemo. Hats off and heartfelt best wishes to those who had/have to endure it and the side effect.","body@stringLength":"1014","rawBody":"Hi @StrongCoffee, I've messaged you privately with my stats
See https://www.bcna.org.au/news/2020/02/oncotype-dx-again-rejected-for-medicare-subsidy/ “MSAC advised the Minister for Health that the evidence presented for Oncotype DX did not give the Committee confidence that the test would identify those patients who could safely avoid chemotherapy or those patients who would benefit from adding chemotherapy,”
However, my oncologist seemed to think the test is reliable, planned my treatment base on it, and said they would offer it to everyone if they could. (Please note they did not inform me of its existence - I was booked in for chemo - I only knew about it because my clever surgeon suggested it). It's certainly not a clear-cut, resounding vote of confidence, but I think I'm glad I skipped Chemo. Time will tell. It's been hard enough without chemo. Hats off and heartfelt best wishes to those who had/have to endure it and the side 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