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cameron's avatar
cameron
Member
13 years ago

Prophylactic Mastectomy & Reconstruction

My mother was diagnosed with breast cancer at the age of 36. My grandmother, who has since passed (from unrelated issues) had a mastectomy to one breast in the 90's. The thought of all this makes me sick, and although I am yet to go through further testing, I have been considering a Prophylactic Mastectomy & Reconstruction since I was 18 and it has been playing on my mind for years. The thought of such invasive surgery gives me the shivers. 

I have also been waiting fuller breasts since my teens, so the thought of just implants wasn't enough for me to contantly think, what if they miss cancer at breast scans. I do not have children, although I am currently engaged and I do plan have them within the next 5 years, I am not concerned at all whether I can breastfeed or not, as my health is just as important and making sure I will be 'healthy' as my children grow older.

So here I am, on BCNA, starting my journey into eventually proceeding with a Prophylactic Mastectomy & Reconstruction.

  • Has anybody here had this procedure, even having not being diagnosed with Breast Cancer? 
  • Is there alot of out of pocket expenses, or is this a good time to take out private health cover?
  • Any other awesome information that may be helpful or and info on the first steps I can take?

13 Replies

  • Thanks so much. Will check it out. I've found it very difficult to find answers regarding a procedure like this. It's easy to get information on how it is done and recovery but not how to actually get there. I'll have a referral letter tomorrow from my doctor to head to a specialist. At least that's a start! ?
  • Hi Cameron, while I'm not in your situation, I did go through genetic testing to see if I had the gene which would have influenced my daughter and sisters actions. During all this my sister came across a DVD called Pieces Of Me, a short doc about 3 australian sisters who had the gene and where trying to decide what to do. It's really worth a viewing if you can get a hold of it. Good luck to you Louise
  • I am sure there are others on this site who can answer your questions.  It is a huge decision which only you can make.  Good on you for researching information and where else could you get better advice than this site.  Good luck. XLeonie