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Elmumof2's avatar
Elmumof2
Member
9 years ago

Dcis , mastectomy and reconstruction having to wait a few months?

Hi everyone 
Just after some advice please , I feel very confused . I saw the surgeon in Wollongong last week and he said I need to have a mastectomy asap (right breast 2 biopsies dcis , mammogram showed it was full of calcifications) and maybe chemo .Left breast had a few calcifications on mammogram .I saw another dr today in Sydney that specializes in breast cancer and works with a plastic surgeon to do the reconstruction straight after the mastectomy .He booked me in to see the plastic surgeon team next week and told me I have to wait a few months for the procedure as I'm going through medicare .
I'm confused , is the surgery urgent or not? How come I need a mastectomy but then they tell me I have to wait a few months? I will give the dr a call tomorrow to clarify how urgent this is but was wondering if anyone else has dealt with a similar situation. Thank you xxx

16 Replies

  • I'm so happy it all went well for you and now you are feeling better . I totally get what you are saying I feel like this is a bad nightmare and can't be happening and experience a lot of anxiety waiting for all these appointments to be over.So good to hear you are recovering and feeling well it gives me hope xxx
  • It went really well. Thanks. The immediate recon isnt a breast its just an air filled xpander they put in to stretch the muscle but it is giving me hope of getting back to normal. Should get implant in a few months depending what other treatments i need. Still dont know. The whole thing is a shock i had all the emotions but now its done im not as devastated as i thought id be. Im glad this has been found and dealt with at this early curable stage. Every doctor and nurse has been so kind and compassionate . I still sometimes think wtf is this really happening to me but im going to b ok and you will too. Back at you with the positive vibes. Thanks xx vicki
  • My dcis is high grade too !!!
    The surgeon in wollongong said I should have the mastectomy asap but the surgeon in Sydney didn't seem to be worried about it as much .So confusing 
  • Ps just clarifying i was medicare too i had initial referrals at  both brisbane hospitals running simultaneously. Im not suggesting cancel the appointment you have already keep it but try for 2nd opinion/timeframe  somewhere else. My dcis was high grade so I was category 1 which meant even under medicare u are meant to get treatment within 30 days ????  V
  • Thanks for your reply @Vallerina
    I will definitely call the breast nurse tomorrow and the surgeon and ask what the time frame is and if I can get reffered elsewhere. How did everything go? How are you recovering? Sending you lots of positive vibes xxx
  • Hi there im a new membet here too in hospital right now after right mastectomy similar situation i also had  calcifications on mammo  also 2 biopsied areas high grade dcis. I have also had immediate  reconstruction it took 3 months since diagnosis to have surgery its a  long story why. I also  was going through regional hospital before they finally refered me to briz In fact i  got referrals to 2 different briz hospitals to see which one could get me in quicker. I had the surgery  within 3 weeks of my first appointment  at this one and they have been absolutely awesome throughout but at the other hospital  i wouldnt have even had my 1st plastics appointment yet. They couldnt even see me till 11/4. And im already done and a week into recovery.  So maybe you can ask the breast nurses at wollongong for another referal to see if you can get in quicker  at a different sydney hospital. The waiting is the worst bit if i was still waiting till 11th april i wouldve lost the plot. Having said that  if its pure dcis it isnt invasive which is why they dont panic about getting it out. But then they tell you that wont have a final pathology until after the surgery. It is totally confusing i agree.  Hang in there . Keep asking the questions. Advocate for yourself and enlist the support of the breast nurses. They are really helpful and caring. This is the group no one ever wanted to join but you will find a lot of support here.  Xx hugs
    Vicki