Forum Discussion
Breast Reconstruction for Paraplegics
Hi I was wondering if anyone here has experience with reconstructions and paraplegia. There are things to consider for me, the type of reconstruction recovery, transferring to a wheelchair, I'm sure there are other things to consider as well. There's not much out there about paraplegics having reconstructive surgery. I hope someone can help me.
Paula
Paula
26 Replies
- OK heres the update. Saw the boob specialist Fri 3rd & had a mammogram & ultrasound. He told me that the seroma & node that's enlarged hasn't changed & maybe a little smaller. Then saw the plastic surgeon on Wednesday about a reconstruction. They won't do it because of my diabetes & my vascular problems & healing & because it's just too dangerous, they said that they didn't want to kill me. So that's stuffed up a couple of things we were thinking about. As far as the paraplegic issue goes they said that in my case the only way they could do a reconstruction, if they would, is to take muscle & tissue from my back around the shoulder blade & pull that around but that would really affect my mobility or they can leave the muscle & just take the tissue but that would probably affect mobility too. They also looked up the results from Friday & told us that the boob specialist is also watching a node in the right boob but he didn't tell us. We're not happy about that. Then we saw the GP on Friday & were talking about it so he's getting all the results & is going to go through everything with his nurse (who's brilliant) before we see them next week. Then we were talking about the medication (tamoxifan) I've been put on & he told us that it's chemo.The boob specialist didn't tell us that either. I'v also been told by alot of people that it was worse than IV chemo. I'm going to give it a go but if the side effects are as bad as aristozale & letrizole (I know they'e prbably spelt wrong lol) Im not going to stay on it. I can't be bed bound for 10 years. I'm REALLY disappointed about the reconstruction & the other options we were thinking about & not being told about the node & chemo by the boob specialist because he's the one who should have told us that. So I guess we just have to wait & see what happens (I feel like a time bomb). Just another bloody thing to worry about. I hope this all makes sense because I haven't read it through LOL Im sure I'v left out stuff they said, Im just not thinking all that straight atm.
Paula - Okay PaulaN, reason I asked is because of the occasional and emergency care service that SCIA run in Sydney. https://scia.org.au/emergency-care . I don't know if they have something similar in Adelaide. But they do have a freecall number - 1800 819 775 or Tel: (02) 9356 8201. If they don't have services they may know of some? Crossing fingers. Xx Cath
- @PaulaN I can get that, no doubt bringing back memories of other times.
Hugs.
Paula xx - Hi Paula I've found in the past the longer I'm in hospital the more I fret. Probably because of lengthy admissions & rehab
Paula - socoda I'm in Adelaide
Paula - Hiya Paula, I am a sook too!! However you may find once you are in hospital and become a patient so to speak that you don't actually mind being where there is help at hand. It's only natural to fret before big surgery so you are not being silly, we all do it. hugs
Paula xx - Hi @PaulaN, Just wondering which state are you located in?
- Hi all my appointment with the breast surgeon is in the beginning of Feb. I have thought about a longer hospital stay but as silly as it sounds, I'm a real sook and fret something shocking. Thanks for all your suppor5
Paula XXX - Hi Paula, just wanted to send a huge hug!!!! am thinking of you, and let us know if you have managed to get an appointment with your Surgeon to refer to a Plastic Surgeon for a consultation as to your options. Melinda xo
- Have you had your appointnent with the breast surgeon yet @PaulaN to find out your options for reconstruction?
