My cancer and treatment is different to yours but I have a burning pain in my nipple and under my arm, it appeared after surgery and can go from short intermittent bursts to an all day event. It is almost 12 months since my surgery and ten months since I finished radiation. I also had chemo and finished that last April.
I have had every medico (2 oncologists, BC nurse, GP, breast surgeon) check my breast and they all said that pain is normal and they cannot feel anything abnormal in the nipple, except that it is hard from the radiation. I just had a mammogram and ultrasound and have been given the all clear there too.
I have a CT scan scheduled for Monday. I insisted on it as it is niggling at me mentally and it is so random, it stops me in my tracks and so it is kind of hard to ignore.
Like yours it is rarely a problem when I am in bed, it just appears as soon as I am up and doing things or even sitting quietly on the couch. Someone suggested that it could be because I was not wearing my bra enough, swinging free at home in isolation lol. So I did try wearing the bra all day for a couple of weeks but the pain persisted.
It could totally be in my head but I just had to insist on the CT as it bothers me that much. Probably because I did have the same burning pain before my BC diagnosis. Tell everyone on your team, get everyone to check it. Better safe than sorry, good luck I hope yours and mine is just that "in our head" xx
