Forum Discussion

eight_days's avatar
10 years ago

Air expander etiquette

 

I'm going in for phase 1 of my reconstructive surgery in two weeks. I'm having the air expander inserted under my right pectoral muscle in order to gradually expand the skin where my long lost right breast used to be. It seems awkwardly weird at best and freakish at worst. I will have a remote control device to expand the skin at my leisure, to the size I wish. My plastic surgeon, who’s personality, I must say, is slowly growing on me, was quick to crack jokes when explaining it. I initially decided I didn’t really like him. I didn’t like anyone remotely involved in the cosmetic surgery game, nor appreciate stuff from him like, ‘don’t stand too close to the garage door when using the remote’, and ‘don’t let your husband get hold of it at night when you’re sleeping’. He was so egotistically confident in his own sense of humour, and his judgement of mine, that I don’t think he noticed I wasn’t actually laughing. So I made the booking for surgery and I parked it. I put all the info in my cancer drawer, closed it tightly, had a ‘why me’ cry and got on with my life. Appointment with asshole cosmetic surgeon, done. Surgery booked for 2016, tick.

It's been 18 months now since I lost my breast. Although it seems so recent that I went through the frightening ordeal of a breast cancer diagnosis and then right mastectomy, having two breasts seems like a lifetime ago. I guess you could say I have become very accustomed to my current flat and scarred right side. Although I have become used to seeing it in the mirror, it was always a temporary look for me. And now here I am, ready to change again. Ready to say goodbye to the mastectomy look. I feel some ambivalence about it however. I won't miss that androgynous, concave side to me, but it is me nonetheless, and that's significant. Me with my scar and missing breast is a symbol of both strength and vulnerability. It is both kick-ass, take no shit and it is also a reminder of illness. It makes me think that I could get through any day going forward, because I have the markings of something hard core on me. It also leaves me feeling incredibly unsexy, old at 40, and mortal.

So here I am, about to embark on the next phase. Since being well, I have been very caught up in my work, my small children, the holidays. I have given the imminent reconstructive surgery and months of awkward recovery and expanding and discomfort very little thought. Staff at work ask me where I’m going on my holiday. Ummmm, Melbourne, I say – which is true, just not the shopping, eating and celebrating trip to Melbourne one imagines. I realised that I had not even thought through what prothesis or bra to wear with an expander at work. What's air expander etiquette these days I wonder? I was wondering that this morning as I rushed into my health fund. I had only enough change for 3 minutes in the parking meter and my 2 year old under my arm screaming to get to Kindergym. I needed to enquire about what parts of my whacking great bill (due today), are covered by private health. I didn’t anticipate I’d be met at the desk by 22 year old hotty ‘Brad’ to talk reconstructive surgery and post mastectomy costs through. He was helpful and very respectful, I just still can’t believe this is my life sometimes. I need to slow down, embrace it, breathe. So I feel ready. Ready to rock the air expander, why the hell not? Ready to laugh at my surgeon’s jokes (he’s actually quite a good guy), ready to grab hold of and engage in the next phase.

(I’m hoping my scar will continue to be a reminder of strength, and my new breast creates a sense of wholeness, symmetry and femininity). Such.a.journey.

  • Renee I'm happy to have a chat with you if you like.  My mobile number is 0401 443 541.

    I also had a small implant under my natural breast to help with some symmetry but this is usually done at the exchange surgery - when the expander is removed and both implants are put in.  

    Lots to chat about - what area do you live in? I'm on the NSW Central Coast. Just thought I'd ask as we have several support group lunches running with Reclaim Your Curves, a member group of BCNA.  If you have a look on the website - www.reclaimyourcurves.org.au  there are support groups in other states too.

    We will also be at the BCNA forums around Australia.

    Alison

  • "He was so egotistically confident in his own sense of humour, and his judgement of mine, that I don’t think he noticed I wasn’t actually laughing." Oh my gosh, I know people like this. They sit there and rattle on so amused by themselves eventually I end up laughing not at their jokes but and how oblivious they are to the reality around them.

    It sounds like you're ready to rock anything. Taking no bs or taking names! And there are entire communities out there based on scar fetish. That thing making you feel so un-sexy has literally hundreds of people jonesing after it! It's the same rule as with money and power, whatever you've got, somebody wants. Just sayin'. 

    x <3

  • Thanks so much Alison. 17 days! Thats fantastic. It sounds like the whole reconstruction with expander process has been pretty positive for you - this gives me lots of hope. I have never spoken to anyone who has used the air expander. I am not a facebooker unfortunately but would be keen to find out more about your experience (promise to no longer use the J word) if you were willing to share. I am having an implant put in my left breast for symmetry and then hope to expand the new right breast until its the same size as the left. What was your recovery time after that first operation? I'm taking a couple weeks off work. Where are you at with things now?

    Thanks again for kindly responding to my post, it was really helpful to read your comments.

    Renee

  • Thanks for sharing your story - it's certainly a part of life that we grow with, and adjust to - not many of us like the word "journey"!!

    I recently used the Aeroform expander (by Air Xpander) and it has been such a positive experience. I lived without my left breast for 12 months then had the expander placed - straightforward surgery, 1 night in hospital, no bandages or drains. Began the expansion myself 4 weeks later and took 17 days to get to my desired size.  After letting everything settle for about 5 more weeks, I then had the exchange to implant early in December 2015 - 12 weeks from Stage 1 op to Stage 2. 

    I used the bra from Best & Less that's like an Ahh Bra - has formed cups in it, and gave a really nice shape. I didn't need to wear the prosthesis anymore, even before I began expansion, because the surgeon puts some in at Stage 1 surgery - so exciting to wake up and see a breast bump!!  After expansion, by lefty was way bigger than my natural righty, so I used the soft form prosthesis with all the stuffing pulled out, and tucked it into the right side bra pocket. It was a great looking shape and no one would ever have known what was going on underneath.

    Lots more details I could tell you, but if you're interested , my photos are in our closed Facebook group "Reclaim Your Curves". We chat a lot on line in that group too.  Hope that helps encourage you and I hope you find it as exciting as I did.  All the best.  

    Alison

  • Hi Paula,

    How lovely to hear from you and thanks for sharing part of your journey. That's encouraging to hear about the air expander. Good idea to post this on that group blog.

    Thanks again and wishing you all the very best,

    xx

  • Wow, you have come such a long way.  I could very much relate to it as lived with one breast for two and a half years before undergoing reconstruction. I actually had a TRAM flap so can't comment on the air expanders.  Having said that I do know one of the ladies in the Breast Reconstruction Online Group who had the air expander.  The expansion process appears to be much quicker and much less painful than the traditional expanders.  Maybe if you post this to that group you may hear from others who have had them.  Whilst reconstruction is not for everyone it is a path that I am very glad that I underwent.

    God bless "Brad" at your health fund.  We're sometimes lucky as we go through all that comes with a breast cancer diagnosis that some people are quite respectful and not say insensitive things.

    I wish you luck in this final phase of your treatment and that you rock that air expander,

    Paula xxxx