Hi I had a mammogram, followed by an ultrasound and a core biopsy last Friday and today saw the specialist and found out I have Invasive lobular breast cancer, possibly stage 2. Not all results have come back yet. I have to have a bone scan on Thursday and a CT scan followed by an MRI the following week, then surgery the week after. I cant stop crying and feel like a weakling as I know there are many others that are worse off in this world. But I am so scared. I keep thinking they will find it everywhere. At this stage my doctor doesn't think that it is in the lymph nodes but checking the rest of my body just in case. I am a counsellor and think that I should be able to handle this, I think about how I would treat a client going through this but it doesn't help, its all doom and gloom. I hope this doesn't trigger any bad or negative feelings in anyone as when I read back what I have written I start crying again.Well thats me, hello everyone.

Hi @RenataW Sorry you had to join us here but you will find so much support and know you are not alone. Firstly, big deep breaths. You can do this. You are stronger than you think. Second, crying is okay. I doubt there are very many on here that didn't lose it when first diagnosed. It is very traumatic and I believe that crying gives us strength by letting it out so that we can move forward. It is fantastic your doctor is doing the scans to make sure. Some doctors neglect to do this and leaves the person wondering if it has spread. Doing the scans puts our minds in a much better place in the long run. It sounds like you have caught it early and the doctor agrees. Whilst waiting for the scans, keep yourself busy. Make some meals to freeze for when you really can't face cooking. Go out with friends and find someone you feel comfortable talking to. If you do not have anyone, find out who the McGrath Breast Care nurse is in your area as they will be able to reassure you. On top of that, you have us, and we are an awesome lot :D.Sending you massive hugs. Some of the others will get on here with more practical advice. I can always remember one lady saying to me, pull up your big girl panties and you can do this. I told her my panties were already over my head and I couldn't pull them up any higher. Cry, scream, laugh, do whatever it takes to let it out and feel good about doing so. Look up the post called Friday Funnies, some of the posts are a bit dark but at least some will cause you to smile again.

Hello @RenataW, Welcome to the group none of us eve thought we'd have a need to join. As a counsellor you can sit back and think clearly for your client but when it is you being affected the emotions get in the way so don't feel that you are a failure. As we all say, take things one day at a time and don't try to think or plan ahead as you may be looking down the wrong path. Things become clearer and fall into place.As @Blossom1961 said we have probably all had a melt-down at some stage. I was doing great until the surgeon left and the nurse patted my knee, saying "you are taking this so well". Ha Ha.As long as you trust your medico and feel they are communicating with you then you are ahead. You are getting the whole gambit of tests which some of us were not even offered so that is good.Do you have family and friends who can be a support to you ? Take someone with you to appointments as they are a second pair of ears - again, your emotions can get in the way and you are contemplating one comment when the specialist is onto the next. You can also ask to record the appointment so you can listen later.All the best. Stay in touch and remember that we are here for you - no question is too small or too silly.

Been to see oncologist and do not need chemo but will have radiotherapy and hormone blockers Letrozole and 6 monthly Zoledronic acid for the bones. Has anyone else had this?

thank you so much for your message, yes I have my support, my husband came with me today. At this stage I feel I need to process on my own and not reach out to support, is that normal? apart from you guys, which have already made me feel better, I also feel like I cant move, I'm in the same clothes I wore to the doctor and in the same chair. I know I will be better, I'm just processing and crying on and off.

Every time a get a message from someone on this forum I feel a little better and so grateful to have found you. I know we don't know each other but the support is felt, and I thank you all for this xxx

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35 Replies

cactusk
Member
2 years ago
Hi @RenataW
I've just started on Letrozole and have already had my first Zometa infusion too (zoledronic acid).
The infusion was actually OK - as @Blossom1961 noted, I too felt a little achey for the next few days but thing really scary.
My first 2 weeks on Letrozole were challenging. The joint aches got me in a big way - wrists, knees and ankles. Thankfully this has subsided now and it's now more annoying than anything. Hoping it stays this way.
Absolute best wishes to you,
Kelly
RenataW
Member
2 years ago
thank you makes me feel better x
Blossom1961
Member
2 years ago
@RenataW I have three monthly Zoledronic acid. Initially I felt like I had the flu for a couple days after treatment. My Vit D levels were good but my Onco suggested I topped up my calcium, which I did. The next Zoledronic was entirely different. No pain at all.
RenataW
Member
2 years ago
Been to see oncologist and do not need chemo but will have radiotherapy and hormone blockers Letrozole and 6 monthly Zoledronic acid for the bones. Has anyone else had this?
RenataW
Member
2 years ago
went back to specialist today and she did remove all cancer from breast there was even some DCIS there but she removed this as well. Need to see an oncologist next week to see if its worth doing chemo, will def have radiotherapy but my specialist seems to think that the outcome is good with radiotherapy even under the arm and chemo would only add another 1% to survival rate. but we will see what the oncologist says.
has anyone had the same outcome?.
Oh and now after surgery it turns out I have IDC not ILC like the biopsy showed and it is still stage 2.
Its hard to keep thinking positive and I love my specialist but hate going to the building. xx
June1952
Member
2 years ago
Good to hear @RenataW - you've done it. Take things one step at a time, you are stronger than you think. 💖
Tri
Member
2 years ago
That’s brilliant @RenataW sleep tight after a torrid couple of days!
RenataW
Member
2 years ago
Thanks everyone
Hook wire done and surgery done and it went well
feeling better now that this part is done
everyone has been amazing xxx
June1952
Member
2 years ago
Hi @RenataW, no-one likes the thought of any surgery so you are not alone in stressing at each new event. Your surgery is probably over as I type. Just wanted to say you are not forgotten. Hoping you are comfortable and we will hear from you in due course. 💖
Tri
Member
2 years ago
good to get that out of the way, sending positive vibes and thoughts to you for the surgery @RenataW

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