Take a seat, Lois.

LoisLois Member Posts: 43
edited June 2020 in Day to day
THANK YOU for all the absolutely beautiful messages of support and encouragement that you all sent to me regarding my post "tears in the dark".  I know it was a pretty profound bit of writing that may have stirred up some memories or given some, the shivers and shakes of what is to come.  

One thing, I have discovered from being a prolific reader is - sometimes, you just need to close the page and let the unknown be exactly that - the unknown.  

I had been amassing information in preparation for probabilities, outcomes, goals to achieve, resilience measures and trying to prepare myself armed with a million different weapons mentally - when in fact, I should of just stood quietly and actually let myself "feel".

That was something I had not allowed myself to do since the diagnosis in February.  I had just stopped 'feeling'. I didnt want to feel the utter terror, the fear of losing what I had around me, within me and the potential of the future. I realised the wall I had built around me was a protection against the continuous onslaught of  what if's, maybes, could be's, never going to happens and the inevitable - will I ever breath slowly again?

I had been warned repeatedly that my 'matter of fact' behaviour was disconcerting to the nurses and doctors and I know they were waiting for the meltdown that would inevitably come.  Which of course it did.  Thank Goodness!!!!  it was a bloody relief and yes, I can now slowly breathe slowly again.

This week, I woke with a new found sense of confidence.  Wonder Woman was still having a nice holiday on a tropical Island but Lois, ME, had been walked freely from my self imposed cage and I walked confidently into the Inner Sanctum with a sense of purpose, happiness and each day, each week that will come means one step closer to whatever will unfold and I do not need to be full of fear but merely acceptance that there may be hiccups, milestones to tick off and of course that time when life will not be full of endless maybe's, could be, hope-not's and the rest of the shit we all tolerate.

I can report this week, no reactions occurred and I finished my 2nd treatment with a smile, a happiness of my soul and dare I say - relief that for once I have NOT opened up any books, websites or research to arm myself once again. 
It is merely what will be will be.

I took the same seat like last week, placed my arm out for the needle and contently sat back and spent my time chatting, eating the delicious lunch supplied and thinking quietly that all of us within that room, had inevitably become historians of our own destiny and we were all free to guide it to the best of our abilities - one day at a time.

To those who have championed themselves through the days, weeks, months and years - I am in pure awe of you.  Truly, in awe. YOU INSPIRE ME.  My admiration for your resilience and encouragement that one day the endless hospital appointments, surgeries, specialists will soon fade to merely living life as it comes - living life to its fullest, is an incentive to breathe slowly, relax and acknowledge this is just a bump not a endless road to nowhere.
To those who have like me, just begun the bumpy road - WE WILL ENDURE. WE WILL FIGHT. WE WILL BREATHE!!! 

As to what song has been playing through my head - Pearl Jam "Alive". Why - because I am still Alive!!!!!!  That is the feeling, I had locked away, way back in February!  I AM STILL ALIVE - I am NOT a walking death sentence!       
 Oh, I, oh, I'm still alive
Hey, I, oh, I'm still alive
Hey, I, oh, I'm still alive, hey, oh.

Big Hugs, Lois.


  • Afraser
    Afraser Member Posts: 4,388
    It’s a remarkable thing isn’t it - when you realise that you’re not going to die - yet, at any rate. Your whole attitude perks up! Now it’s about ‘how do I live well - or as well as possible - with whatever the fall out is’. And many of us also felt oddly more optimistic about that too. While I have significantly amended my ‘fear the worst, then anything else is better’ attitude over the last seven years, mainly because it gave me such unnecessary and unwarranted grief, there is some small benefit in getting it out of the way early! Best wishes.
  • JMR006
    JMR006 Member Posts: 2
    This really resounded with me and how I feel.  Thank you so much
  • LoisLois
    LoisLois Member Posts: 43
    @JMR006 - glad my words offered some help. We all have different lives, but our diagnosis has brought us into a huge community of camaraderie, sharing, acknowledgement of who we are and the power to keep finding the strength. 
    Feel free to write to me or put yr thoughts down. It is liberating to the mind and soul. You are amongst brilliant people with big hearts. Big hugs to you xxx Lois