A hugely challenging experience
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System
Posts: 63 ✭
This discussion was created from comments split from: Breast Cancer surgery - the gift that keeps on giving.
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ello, one day to a dr, with a hard mass and sore throat and a hole in arm that never healed and got bigger, next a dr only treating one problem via a breast scan, went to my daughters gp, many referrals, many tests, in monday boob off, out tuesday, another dr on friday in monday half toungue removed, throat cut ear to ear, arm big scar, other arm in brace, nose tube etc etc, meant to be in a week was there two months, 3/4 of teeth removed, the rest removed for rad treatment, only to be told after last of teeth removed to go see dr, who also explained i had an inoperable brain tumor....., so you can see I am just starting to cope with the first op
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hi @relign
what a huge experience I am so sorry that you have been through this .. Relign I have also inboxed you with our helpful links etc to understand the forum.
@Giovanna_BCNA
Could you possibly make the above a separate post for relign so she can get responses regarding what she has shared.
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Hello and welcome @relign. I have split the discussion to aid responses as @SoldierCrab suggested. It sounds like you have had a very difficult few months. Please don't hesitate to call the BCNA Helpline to talk to a cancer nurse for information and support on 1800 500 2582
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Hi @relign
what a huge challenging experience. Can’t even begin to comprehend what you’ve been through but as a nurse I’ve helped many through similar experiences and have seen how hard it is to expect a short stay and be kept there much longer.
Keep strong we are thinking of you xx0 -
Thankyou0
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Can't imagine for one moment trying to cope with all that has hit you at present.
One step at a time
Please update us as you go along as we are all willing you to best outcome possible from treatment
Take care0 -
I,m doing oki, next app is april29th, two oncologist, one boob, one mouth, I,m good, just still in pain, can,t eat solid food, and why am I walking lopsided! hahha
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A little bit of humour helps!0
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Given what you've been through - your attitude is just amazing, @relign - all the best for your appointments with the Oncs .... I hope the pain subsides & you are able to eat solid food soon.
When my husband was ill & unable to take solid food, I used to make 'smoothies' out of 'anything'! A currie (with extra gravy/sauce) could be pulverised into a liquid & just swallowed. I used to do the same to Roast Lamb & mint sauce & veg & many other dishes .... I would smash them to a liquid (so he gets the flavour of the food), just not the texture, until he was able to get onto solids. Be adventurous with your food - I also used to 'value add' custard and cream to an old fashioned Egg Flip & other 'puddings', to add some 'depth' to it ... and some calories. Rice Pudding & peaches pulverised together is LOVELY too. I hope you don't lose too much weight whilst on the liquid diet.
Take care xxx0 -
Hi @relign.
Such a lot to take in a very shirt time. Did you have breast cancer before this diagnosis?
Have you been linked with a breast care nurse and have you been sent the package from bcna?
https://www.bcna.org.au/resources/hope-hurdles/
Also there is a specific group which might also be helpful.
https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer
@System or @Giovanna_BCNA am wondering if this should actually be in newly diagnosed tag or most likely metastatic cancer tag now.
Thinking of you. We are here to help any way we can. Kath x
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thankyou everyone, nice to be able to talk about it, with people who have walked this path before, and I,m thinking that boob fed three children, was loved and touched, but its just a boob, not a leg or arm, its removal does not define me, well I,m telling myself that smilez
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@relign Certainly initially we can be dismissive of the loss of a boob...just a boob is a common saying. However it is amputation of not only a functional organ but a sexual one. Yes...life may not seem affected without it. But for most women...once the dust has settled and the inital horrific time of diagnosis and aggressive treatment has past...grief of that loss sneaks up. It's okay to grieve when that time comes. It's not being shallow, its just part of the many adjustments we have to make following breast cancer diagnosis, and given your current treatment you have a lot of adjustments to make to the changes in your body. Take care. Kath x2
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So true @primek It took three months after the mx before the loss hit me. My head isn’t really getting around it. It sounds weird, but I am left confused about it.0
