Forum Discussion
Using social media for breast cancer advocacy
I'm advocating for men with breast cancer, but much of the information in this article is useful for those here looking to spread their messages beyond the pages here:
14 Replies
- Thanks.
- I think you need to contact the mods and will need a group administrator.
- Hmmm, setting up a group here is not very intuitive. Does anyone have an idea how to do this?
- No worries just thinking about those poor newly diagnosed blokes who may be somewhat inhibited by so many ladies initially - that is until they get to know us. :)
@Romla For now this page serves the purpose IMO:
https://onlinenetwork.bcna.org.au/discussion/16001/male-breast-cancer
But, sure, a group page would be better. I'll set one up.- So how about a men’s group @traveltext to get the ball rolling here ?
@Romla @kmakm I hear you loud and clear. Yes, men will talk to other men when they know it's private. I find this since I'm on a prostate cancer FB page and men go on about anything and everything (mostly about sex or the inability to have it after a prostatectomy) to each other. I've noticed over the past four year, also, that very few men publicly chat about their breast cancer. The ones that do end up here:https://malebreastcancercoalition.org/survivor-stories/
Interestingly, 10 of these men are like me and have both breast and prostate cancer. For women, as you would be aware, it's breast and ovarian cancer that sometimes go together.
I edit these stories when they come in, so I know all about these guys. However, because of the small number of men overall, a small percentage of bloggers still means just a few men here in Australia (150 new cases a year). In the U.S. it's around 2,500 cases per annum.
Similarly, only a small percentage of women with the disease post on BCNA, but a small percentage of a much larger number means plenty of women wanting help and plenty of women offering help. This is excellent.So, you can see why I go global!!
I have to say, though, that whenever I come here, I find a great bunch of supportive women.- @traveltext also as male members on the blog are relatively small it might make it easier for new male members to find another male member
- I second that @Romla.
- In light of the above @traveltext in addition to contributing on the general blog page would it be useful to have a blokes group on the blog.I only suggest this as they maybe some matters concerning male bc people that they may feel more comfortable in a private space ? I do however reaffirm my first comment about still participating in the general blog.Just a thought as there is a topic or two I’d rather share with a female plus may help a newbie bloke find the confidence to join the blog initially.
