Friday update 13 July 2018
Hello everyone and welcome to Fridays update.
It’s been a busy couple of weeks within the online network with
lots of activity. The online conversations
have been many and varied and the highs and lows have been reflective of the
reality of living with a diagnosis of breast cancer.
Some of the events of the last few weeks has prompted
Marianne to include a few timely reminders and clarify a few things in today’s
update.
Our Community Guidelines clearly state that
members of the community should always treat each other with respect and never
attack other members of the community or the BCNA team.
Whilst you are part of this community
because you have a breast cancer diagnosis, that is pretty much where the
similarities stop. You are an extremely diverse group in terms of the type of
diagnosis you have, the stage you are at, the treatment you have had/are having
and the impact of all of this on you. There is also a diverse range of
backgrounds and personalities. This diversity means you are going to have a
different range of experiences and opinions. You are not always going to agree.
That is perfectly fine, and in fact it is what makes this community so special,
but everyone needs to take responsibility for how you express and respond to
these differences.
Please always remember that unless you are
commenting in a private group, your comments are not private and can be seen by
anyone and can in fact show up in a google search.
Our community guidelines state that the BCNA moderators
reserve the right to edit, move, close, and delete discussions. Members who
seriously, persistently, or wilfully ignore the community guidelines may be
placed on pre-moderation, temporarily suspended, or banned from the online
network. Decisions taken by our moderators are final and will not be discussed
within the online network or privately with anyone other than the member
affected.
We don’t take this role lightly and always prefer the
community to self-moderate and manage any issues that arise. This after all is
your community. We will and do step in however when needed. To respect
individual privacy we will usually manage issues privately rather than publicly
but when necessary we will close or delete comments or whole discussions and
will explain publicly what we have done and why.
We only have minimal moderator coverage after hours or
weekends so sometimes discussions will take a turn without us knowing. Please
private message us to alert us to an issue if you have concerns and have not
seen us respond.
And please treat BCNA staff with respect. We are open to
feedback and acknowledge that we may not always get everything right but we
will always have the best intentions and give careful thought to how we respond
to best meet the needs of the individual and the community.
The community is here to provide a safe environment for
people to share their experiences and receive support and understanding. It is
not for receiving medical information. Our moderators are nurses and we do endeavour
to correct inaccurate or misleading information but any concerns or need for
individual information should be discussed with your medical team.
There can always be times where something touches a raw
nerve with you so if you find that you have posted something that you feel may
have been a little over the top or disrespectful, you can always acknowledge
your reaction, apologise and move on. You can also contact us and we can
discuss your options re editing or deleting the post. We are always happy to
assist. If you are offended by something someone has said, try not to fire back
as this only escalates the situation. You can calmly let the other member know
how this has impacted you either via a post or privately. Remember, the aim
here is to resolve the issue not inflame it.
Most importantly though, enjoy the online network. You are
an amazing community who 99.9% of the time provide the most beautiful and
thoughtful responses and support for each other during difficult and
challenging times. The online community is an important part of BCNA and you
experiences help shape the work that we do.
COMMUNITY HIGHLIGHTS
Every week we have so much variety in the posts being shared
online. See three of my favourite recent
conversations that you may have missed!
Great thread
started by @kezmusc, which highlights her playlist of 3 songs which are
reflective of her day!
2.
Beach
Therapy
Great thread started by @Sister which shows some beautiful photos
of her morning beach walk! There is
such beauty in nature, what a beautiful photo.
Great thread commenced
by @Tracey_B with some great reflective quotes.
COMMUNITY NEWS
Book – This Present Moment by Meg
Welchman
Meg Welchman has just self-published
the second edition of her book titled This Present Moment. Meg
is a BCNA member who is living with advanced breast cancer. In her words, the book ‘charts how I
cope with adversity as a psychologist and cancer survivor. This is the book I wish I read when I was
first diagnosed- to know that almost 8 years on there is both surviving and
thriving despite having secondary cancer....It would have helped me immensely.’
A review of Meg’s first book - This Present
Moment: an art therapy journal by Meg Welchman is available via the link below
https://www.bcna.org.au/news-events/book-reviews/#presentmoment.
The Past, Present and Future of
Breast Cancer Research – Public Session
As part of activities to recognise their
40th anniversary in 2018 and on the eve of their Annual Scientific Meeting for
researchers, Breast Cancer Trials will be hosting a Q&A event at The Art Gallery
of NSW, to discuss The Past, Present and Future of Breast Cancer Research.
Moderated by Journalist and Channel
10 presenter Sandra Sully, the Q&A will feature a panel of breast cancer
experts and trial participants, to discuss and answer questions about the
history of Breast Cancer Trials research group, key milestones in breast cancer
research and clinical trials, current research trends and developments, and
what can we expect in breast cancer research in the future.
Panellists
Professor Alan Coates AM
Professor Fran Boyle AM
Ms Leslie Gilham
Associate Professor Nicholas Wilcken
Associate Professor Prue Francis
Professor Cristin Print
The
Past, Present and Future of Breast Cancer Research is being held in Sydney on Tuesday, 24 July from
6.30pm to 8pm at the Art Gallery of New South Wales.
It’s free to attend, but you will
need to register. (https://www.eventbrite.com.au/e/qa-the-past-present-and-future-of-breast-cancer-research-tickets-46059786060).
The event will be broadcast
live on Facebook.
Q&A Event – The
Past, Present and Future of Breast Cancer Research
STAND WITH ME AT THE 'G
Join team BCNA and volunteer at our iconic Field of Women which only occurs every 4 years. We’re looking for 300 passionate volunteers to
create this event. The volunteer shift is 9am – 5pm, with shorter shifts and
sedentary roles available. Please contact Chloe to register to volunteer at specialevents@bcna.org.au or (03) 9805 2529.
Hoping you all have
a great weekend, stay warm and have fun,
Regards Giovanna
Comments
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@Giovanna_BCNA and @Marianne_BCNA
Thank you for the care shown to us all. We are all vulnerable at various times and the slightest upset can cause turmoil.
Take care and keep up the good work
Hugs4 -
Thanks, @Giovanna_BCNA for the update. I know the discussion you refer to upset a lot of people - it's up to us to behave as adults and respect others.
The Q&A sounds interesting. I'm not sure how you watch a broadcast on facebook. Has anyone else done it?2 -
Awww thank you for the mention @Giovanna_BCNA. xoxoxo2
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Thankyou @Giovanna_BCNA for the timely reminder of our obligations on the blog. It is a wonderful gift to the community the blog and all should be treated with courtesy.3
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2
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Hi Sister, you don't need to register to watch the live Facebook broadcast on Tuesday night (only to attend in person). You will be able to watch the broadcast on Breast Cancer Trials' Facebook page: https://www.facebook.com/BreastCancerTrials. Cheers, Lisa
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Thanks, @Lisa_BCNA - now I just have to remember1
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