Forum Discussion
2 years on Prolia injections have significant affect on Bone Density improvement.
Hi Ladies,
I love the sharing of information as I think it's valuable to everyone here. I had my Oncologist visit yesterday and received my Bone Density results. Compared to 2016 there is a marked improvement in my TScore in the Lumbar Spine it was -2.9 and now is -2.2 with a Z-score that was -2.4 and now is -1.6. The Oncologist said it is an incredible improvement and indicative of the Prolia injections. In 2016 my Bone Density post Chemo was deemed Osteoporotic. I don't do weight bearing exercises but I know the benefit of it. I do exercise and am active in my job however. I am super happy to be out of high risk, whilst I'll never be fantastic, alot has to do with genetics he said, he's really happy with where it is. So I will have 1 more year on Prolia which I can add....has zero symptoms :)
As a result of this after 3yrs I am now pushed to yearly Oncology visits woohoo!!!!!!
My Oncologist in 1997 undertook a 3-year breast and lung cancer clinical research Fellowship at the Royal Marsden Hospital in London, working with Professor Ian Smith.
He is a member of the Australian New Zealand Breast Cancer Trials Group, and until recently was the head of the Breast Trials Group of Cancer Trials Australia. He has authored articles appearing in journals such as the Journal of Clinical Oncology, Annals of Oncology, The Breast and British Journal of Cancer.
He also said in terms of risk of recurrence, it is solely based on an individuals diagnosis, pathology/histology and genetics only that will determine this irrespective of anything else. That it has been OVERDONE in terms of the message to reduce risk together with stats.
M x
I love the sharing of information as I think it's valuable to everyone here. I had my Oncologist visit yesterday and received my Bone Density results. Compared to 2016 there is a marked improvement in my TScore in the Lumbar Spine it was -2.9 and now is -2.2 with a Z-score that was -2.4 and now is -1.6. The Oncologist said it is an incredible improvement and indicative of the Prolia injections. In 2016 my Bone Density post Chemo was deemed Osteoporotic. I don't do weight bearing exercises but I know the benefit of it. I do exercise and am active in my job however. I am super happy to be out of high risk, whilst I'll never be fantastic, alot has to do with genetics he said, he's really happy with where it is. So I will have 1 more year on Prolia which I can add....has zero symptoms :)
As a result of this after 3yrs I am now pushed to yearly Oncology visits woohoo!!!!!!
My Oncologist in 1997 undertook a 3-year breast and lung cancer clinical research Fellowship at the Royal Marsden Hospital in London, working with Professor Ian Smith.
He is a member of the Australian New Zealand Breast Cancer Trials Group, and until recently was the head of the Breast Trials Group of Cancer Trials Australia. He has authored articles appearing in journals such as the Journal of Clinical Oncology, Annals of Oncology, The Breast and British Journal of Cancer.
He also said in terms of risk of recurrence, it is solely based on an individuals diagnosis, pathology/histology and genetics only that will determine this irrespective of anything else. That it has been OVERDONE in terms of the message to reduce risk together with stats.
M x
49 Replies
- @Joannie of course, he a very reputable Oncologist in Melbourne and yes is on the fringe I'll PM you. x
- @LMC1310 oh goodness!!! LOL yes I certainly did, so glad you remember where my path was at that time, I have always spoken volumes of how great an Exercise Physiologist was and is especially in recovery. Sadly many have presumed Im anti exercise which as you know from my history couldnt be further from the truth.
I am so humbled to hear you went on and have done all that, OMG!! fantastic!!! Now that I am in a position to do more, I will start weight bearing. Thank you! as you know too well my path, you know what this would mean to me with such a massive improve in my spine again not just due to the Prolia but other things I have done to improve bone density. So I seriously have no concerns that I will go right back to where I started at all with everything I have in place. I didnt have a choice, as I and many others dont have many choices in their treatment.
Yes bonus that Prolia reduces the risk, and frankly the Oncologist said that and the AI are the only things that will. :)
So onward ladies to a much stronger and better future :) so lovely to hear from you @Lmc1310
@Joannie no I didnt put up that link and yes 7yrs and physically am the best Ive been so far. x - @Joannie the clinical trial link: www.ncbi.nlm.nih.gov/m/pubmed/28975661 - it cost USD$38. I'm no expert so found it hard going and a lot went over my head. Whilst I am loving high intensity weightlifting and hoping it strengthens my bones as it did in the women in the trial, the fact that the report noted that the trial excluded women undergoing cancer treatment or pre menopausal is of some concern for me. I am going to discuss continuing the bone clinic program with my oncologist and reviewing in 12 months. It is of course a worry too that I am forgoing Prolia's impact on recurrence. @Joannie I'm not sure if my link is the same as Mel's.
- I just purchased and read the full report on the Liftmor (bone clinic) trial August 2017, Griffith University. From my reading the study was for post menopausal women and excluded women undergoing cancer treatment among other exclusions. @melclarity you are absolutely right having faith in your oncologists and continue to rejoice in your results. It would be great @BCNA, if a trial of Liftmor for pre and post menopausal women undergoing BC treatment could be sponsored. I am much earlier in my journey Mel and have osteoporosis in my arms and osteopoenia back and hips. I will give the programme 12 months and then if necessary start Prolia. I am a little unsure as Prolia has been shown to reduce the risk of recurrence. As @Afraser says, decisions, decisions. In the meantime Mel, continue your trail blazing and valuable support you give us all.
- Hello Mel, I remember when I first came on this site (12/16) that your posts promoting using exercise physiologists inspired me. As a result I found an exercise physiologist during first AC chemo. Through my interest in exercise (inspired by you) I researched ways of building bone rather than taking drugs. I found the clinic in DeeWhy because of you. It has been running for around 6 months. Your journey has been longer and has been inspirational. I respect your input very much. Thank you so much and very best wishes.
- @Primek I think I was honestly just focusing on the result which I shared, I welcome opinions absolutely, but I think people may not have realised the story behind it and why it was good news for my individual case. It did take away from a little joy and win that I felt for the first time in 3yrs. Kath, I have been lucky in that I have only been with my Oncologist for 3yrs since 2nd diagnosis, so not my whole 7yr path. Our appointment last week was the first one where I walked out with a respect for him, for his knowledge and his expertise. He has always been brutally direct and a no nonsense approach which I value, there is NO sugar coating with him and I have found it hard in the past. Everything he talked of made complete sense, it was hard to hear his opinion of my previous diagnosis and the handling possibly of it.
I think I am very misunderstood and others seem to miss the parts in all my posts where I have said, I exercised heavily prior to 1st diagnosis, after that and pre 2nd diagnosis. The minute I finished chemo I had a very LONG HARD recovery, thankfully I had an Exercise Physiologist who I cannot praise enough that I worked with for over a year. I exercise NOW! am rigorously active in my job also. I have ALWAYS been PRO exercise for many reasons...seems some only hear a certain part of what Ive said in relation to this.
I know the value of weight bearing exercises, and building into it now, I actually did body building in my late teens early 20's so I know all about it, I even still have my weightlifting belt. LOL and it fits ;)
I also dont attribute my good results to JUST Prolia, I have worked DAMN HARD!
I've been on medications for 7yrs, 4yrs on Tamoxifen and 3yrs on Arimidex/Aromasin, did that impact my bone density prior to chemo, possibly. So yes I'm proud of what Ive achieved :)
