Media for launch of our State of the Nation Report - we want you!

Marianne_BCNAMarianne_BCNA Administrator Posts: 246
edited June 2018 in Community news and events

BCNA is launching our State of the Nation report on 20 June which many of you would have contributed to.  The report is the result of more than 10,000 surveys completed by BCNA members and 3,500 face-to-face consultations around the country and highlights the gaps in breast cancer treatment and care across the country. 

We are looking for women who are willing to talk to media about their experiences and are ok with being recorded or filmed regarding the topics below (as you can see we have some pretty specific requirements!):

Fertility

  • Women who were not given all the information they needed about fertility before their treatment began
  • Centrally located (i.e. living in a city) - Ideally Melbourne or Sydney

 Lymphoedema

  • Women who have struggled to get lymphoedema treatment in the public system
  • Women who have had to pay a lot of money to get lymphoedema treatment in the private system
  • Women who have had a lack of information about lymphoedema
  • Willing and able to have their affected arm/area photographed
  • Centrally located - Any state or territory

 Financial disclosure

  • Someone with large (greater than $10k) costs who did not know about them beforehand – ‘bill shock’ 
  • Someone who almost had a large cost BUT was advised by their Dr/health fund/BCNA etc and were able to avoid these costs 
  • Someone with a large cost (documented) that built up over time and was not disclosed to them
  • Centrally located -  Ideally WA or SA

Mammography in Tasmania 

  • Someone who had a breast symptom and could not get a mammogram in the public system, so had to pay for it
  • Centrally located

 Reconstruction

  • Someone who is waiting for a reconstruction in the public system
  • Has been waiting between 3-5 years
  • Ideally willing to be photographed in a way that shows she has not had a reconstruction (not nesc. topless)
  • Centrally located
  • Ideally QLD

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Comments

  • SoldierCrabSoldierCrab Bathurst NSW Member Posts: 3,225
    Centrally located means ? Marianne? 
  • Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 1,208
    Hi @SoldierCrab
    I have just confirmed with Marianne, centrally located means near a capital city.

  • Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 1,208
    Or able and willing to get to a capital city at short notice  :)
  • onemargieonemargie queenslandMember Posts: 1,241
    Hi there @marianna I could contribute to the recon discussion but I work so getting into Brisbane at short notice could be a problem. I’ve been waiting 2 years for recon but have been told it will be at least another 12 months. Let me know if i can still help. I did do the interview with channel 10 brisbane last year if this helps too. Margie. 
  • Marianne_BCNAMarianne_BCNA Administrator Posts: 246
    Hey @onemargie, we have you on our list of people to contact if we get media requests. None yet regarding reconstruction in Queensland but hopefully we will :)

  • kmakmkmakm MelbourneMember Posts: 7,615
    What's wrong with the Queensland press?! They should be pushing & shoving in a very non-orderly queue!
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