Blog Post
Kristen
4 years agoMember
Lymphoedema Support Group of NSW
information days have been invaluable information for me since I went to
my first one in 2015 (I think that was my first,I been to a few )
After being diagnosed with secondary arm lymphoedema since 2010 due to
breast cancer /masectomy/lymph node dissection in 2007.
Learning about what it is and why its important to keep the swelling down helps motivate me to stay on top of it,but it has taken many years to learn tips, tricks, methods, products etc fill my 'toolbox' of knowledge to be able keep the swelling down.Its a daily challenge and different things work for different people,so it's not simple to treat and manage. Could not do that without lots of information.
It really 'gets my goat' when I meet people with large limbs who weren't diagnosed early,and who often are then told nothing about how and why to look after this chronic condition.Even many mainstream specialists and GPs and physio are not always aware of the new methods of treatments.I have meet people who been told nothing they can do about it ! SO WRONG!!!!!
It breaks my heart to meet and see people become physically impaired,mobility challenged,depressed,getting dangerous infections and financial challenged due to excessive lymphoedema swelling from poor information and support.
Fellow lymphies spread the word.We have to encourage each other to keep being proactive in learning how to monitor and manage our swelling.No matter what the cause of the lymphoedmea,or the part of our body that is effected.
This conference will be great for anyone who has lymphoedema and now it's virtual this year, anyone can attend from the comfort of home.
FYI. It is a live virtual event,and a recording will not be made available for viewing after the event.
Sat 6th Nov 2021 9.45-2pm
Australian Eastern Daylight Time (AEDT)
Short breaks ,including a 30 min lunch break have been scheduled.
Program may be subject to change without notice.
See the Lymphoedema Support Group of NSW webpage,their Facebook page and the Eventbrite page for more information and to book tickets.
Learning about what it is and why its important to keep the swelling down helps motivate me to stay on top of it,but it has taken many years to learn tips, tricks, methods, products etc fill my 'toolbox' of knowledge to be able keep the swelling down.Its a daily challenge and different things work for different people,so it's not simple to treat and manage. Could not do that without lots of information.
It really 'gets my goat' when I meet people with large limbs who weren't diagnosed early,and who often are then told nothing about how and why to look after this chronic condition.Even many mainstream specialists and GPs and physio are not always aware of the new methods of treatments.I have meet people who been told nothing they can do about it ! SO WRONG!!!!!
It breaks my heart to meet and see people become physically impaired,mobility challenged,depressed,getting dangerous infections and financial challenged due to excessive lymphoedema swelling from poor information and support.
Fellow lymphies spread the word.We have to encourage each other to keep being proactive in learning how to monitor and manage our swelling.No matter what the cause of the lymphoedmea,or the part of our body that is effected.
This conference will be great for anyone who has lymphoedema and now it's virtual this year, anyone can attend from the comfort of home.
FYI. It is a live virtual event,and a recording will not be made available for viewing after the event.
Sat 6th Nov 2021 9.45-2pm
Australian Eastern Daylight Time (AEDT)
Short breaks ,including a 30 min lunch break have been scheduled.
Program may be subject to change without notice.
See the Lymphoedema Support Group of NSW webpage,their Facebook page and the Eventbrite page for more information and to book tickets.
#lymphoedema
#BCRL
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