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- P.s. I as the same as you re wanting to see the tumour. I just wanted to see it with my own eyes and know that it was out of me. But Dr Elston shook his head at me with that comical expression on his face that said I can see why you want to but that is just not possible.... Heheh. He said... Mmmmmmm no, you can't see it, it's been sent to pathology. Heheh.
- Hi Kylie, Thanks for letting me know how your going and what a ride hey. I'm hoping that your second cycle is treating you ok so far. I probably passed you at some point at the LPCC on Tuesday, I had a big day there. FEC is a rough one I hear so I hope that the first day is getting better for you. Just think... Two down, only one to go! And I hear that D is a walk in the park after FEC. I hope it is for you. I chose AC&T over the FECD. Both gave me the same survival rate stats so we will see how we go with it. As they say, everyone reacts differently, I'm hoping to be one of the smooth sailers.....fingers crossed! Your message about those wonder fresh juices has made me thirsty. At the moment, I'm surviving on spinach, kale, mango, pineapple and banana smoothies. I love them. I also have a particular love of apple+carrot+Ginger juices. There is nothing better. With some ice thrown in....,mmmmmmm perfect for this heat wave we are having, bring on the wet already!!! I'm a homebody too, which is surprising for a saggitarian but perfect for my partner who is the quintessential cancerian and funnily enough, will hopefully bode well for being stuck at home as a result of treatment. We will see how we go. Taking each day as it comes.... Yes... So so true! I'm having a port put in tomorrow because I will be having 4 cycles of three weeks of AC and then 12 weekly cycles of D and I'm petrified of needles. That coupled with only having one good arm left with some semi nice veins sealed the deal for me. So... I'm forward surgery under a general and out tomorrow night before chemo on Monday. Might see you there sometime :-) Take care, Best, Janina
Hi,
Oh I didnt realised islam had left, i saw him last in Oct and wont see him or whoever else for another 6 months.
I finished chemo last March, I did 6 rounds of FEC-D and no rads and 5 years of Tamoxifen, there was talk that its now recommeneded for 10 years!! Aaaaargh! Ive also had my expander to implant surgery in May.
Everyone reacts so differently to chemo and the different types of drugs they give you. To be perfectly honest my first was horrid, the nausea was the worst. But every chemo got a little better. Then when I had D it was different symptoms all together, mainly sore achey bones and muscles. Just make sure you talk the medication they give you after, and if its not working let them know. The nurses are just lovely and really look after you.
Everytime i had chemo I took a water bottle, magazine, ipad and a few snacks. do you have family and friends in Cairns? Please let me know if you'd like to meet up for a chat or if you'd some company when you have chemo. x
Hi,
Oh I didnt realised islam had left, i saw him last in Oct and wont see him or whoever else for another 6 months.
I finished chemo last March, I did 6 rounds of FEC-D and no rads and 5 years of Tamoxifen, there was talk that its now recommeneded for 10 years!! Aaaaargh! Ive also had my expander to implant surgery in May.
Everyone reacts so differently to chemo and the different types of drugs they give you. To be perfectly honest my first was horrid, the nausea was the worst. But every chemo got a little better. Then when I had D it was different symptoms all together, mainly sore achey bones and muscles. Just make sure you talk the medication they give you after, and if its not working let them know. The nurses are just lovely and really look after you.
Everytime i had chemo I took a water bottle, magazine, ipad and a few snacks. do you have family and friends in Cairns? Please let me know if you'd like to meet up for a chat or if you'd some company when you have chemo. x
Thanks Diana :-)
Hi Samantha,
im so sorry to hear they misdiagnosed you! That's terrible news.... or is it? Is it misdiagnoses of th good kind or the very bad kind? I hope your ok.
i hear Dr Pandey sis great. I am seyeing Dr Gupta,he is the "new dr" so everyone keeps saying but I've found him to be very good so far.
I start chemo on Monday. Are you still going in to Liz Plummer Ctr
sorry for the later reply, Christmas took me by surprise in the middle of my cancer crises Heheh.
Best,
Janina
Hi Mummyrach,
thanks so much for replying, I have heard such great things about Dr Islam. I think he has left now?Unfortunately?
I am seeing Dr Gupta and so far he has been quite good with letting me set the pace, make the decisions and supporting what I have wanted to do (e.g. Getting a port). So I'm happy. I'm very nervous about chemo but now that I have been into the centre for my zoladrx injections and I have met the chemo nurses and have got a feel for the place I'm feeling so much more comfortable. I'm at the start of the road, 4mths AC&T, then 5weeks rads and then 5yrs tamoxifen. Can't wait to be where you are! Which chemo did you have and how did yout find it? I have chemo ed tomorrow, so will know so much more affter then I think :-)
best,
Janina
- Hi Janina, How are you going? I was diagnosed in Oct 2012 at 37. Dr Green did my surgery and I had chemo at the Liz Plummer Centre, my oncologist is Dr Islam. They do a fantastic job, I was completely happy. I finished chemo in March last year and now on Tamoxifen. Hope your doing well. X
Hi Janina
Glad all went well for you with Dr Elston. I thought he was wonderful in many ways also, of course most importantly with how he dealt with my surgery. Sounds a little crazy but would have liked to have seen the tumour though just for that confirmation it was really gone! I had my first cycle of FEC Tuesday just gone, I am on a regime through the Liz Plummer of FEC for 3 x cycles (every 3 weeks) and then 3 x cycles of docetaxel (every 3 weeks). My wonderful husband is getting 2-3 cups of fresh juice of kale, celery, beetroot, cucumber and carrot..of course with slight variations i.e pear, apple every day and we have just found an amazing man that is letting us collect green baby coconuts from his trees, so am drinking the coconut water and eating the flesh. I am very grateful for how my body has reacted so far, hit really hard first night battling nausea and just indescribable 'body weirdness' but last two days have felt incrementally better from then. That whole take every day as it comes motto has never been more real for me personally, I get it now! I took a good few weeks to make a decision, we looked at so many therapies offered around the world, focussing on combined conventional with alternative. Fried my brain over those few weeks, came down in a heap and found my decision. It's ironic but I know I am going to be a better person for the journey I am on, so that is really empowering me. Already the connections I have re-made and new ones with extremely special people are just the ultimate for me. I am a bit of a hermit as am a cancerian true to nature but am riding now on the energy of all my amazing family, friends, old and new. I am only 39 too, 2 children and all of this is so left field in every possible way..like most. Would be nice to hear how you are going. Take care xo
Hi Janina,
I was also young - 34, when diagnosed in 2010. Dr Elston did my masectomy and I can't fault him, fabulous surgeon and great to talk to for information. I went public for my chemo at Cairns Base, as I also had let my insurance slip and they were fabulous. Radiation in Townsville as it wasn't available in Cairns at the time. I have just finished, yesterday as a matter of fact, another year of treatment as they discovered they misdiagnosed my original tumour and I can't fault the Liz Plummer Centre. My new Oncologist Dr Pandey (Public) is great and they have now put in place new procedures so that no one else can be misdiagnosed. I live in the Tablelands region but am happy to talk. Good Luck.
