🏡 The journey can look completely different for our rural, regional and remote community members – and we are here to help.
We want to take a moment to acknowledge that the breast cancer journey can be especially challenging for those living in regional, rural and remote areas. From limited access to specialists and treatment centres, to the toll of travelling long distances for care, these members often face extra layers of complexity. Your voice matters and can form change to help yourselves and others in this position. For those interested, you might like to participate in this public consultation to develop a new Optimal Care Pathway - open until tomorrow night. Our helpline is here to help you navigate the journey for those living in less accessible areas, and any resources that have helped you overcome this challenge may be the answer someone else is waiting for. 💬 If you haven't already, connect with others in the Online Network group: Connecting rural, regional & remote areas
A new Cancer Clinic in Sydney to include Regional NSW Hospital partnerships as well
$20 million to establish world-leading clinical trial centre for all NSW residents 17 August 2024 A world-leading clinical trial centre in Sydney will soon provide increased access to international cancer clinical trials, thanks to a $20 million donation to the NORTH Foundation from philanthropists Greg Poche AO and the late Kay Van Norton Poche AO. The NORTH Sydney Trials and Research Van Norton Poche (NORTH S.T.A.R VNP) is a partnership between Northern Sydney Local Health District (NSLHD) and world-renowned Memorial Sloan Kettering Cancer Center in New York. NORTH S.T.A.R VNP will be located at the Sydney North Health Precinct, which includes Royal North Shore and North Shore Private hospitals, and will be available to all Australians, with regional NSW hospital partnerships also established. The centre will also be used to attract the next generation of doctors, scientists and researchers to Australia and provide greater funding to discover cures through research and development. Within months of the launch, the Centre will open four new studies including three clinical trials, providing access to new treatments for patients across metropolitan, regional and rural NSW. More info below: https://www.health.nsw.gov.au/news/Pages/20240817_00.aspxPublic or Private (please help!!)
After diagnosis of High Grade DCIS with Mastectomy required. My husband and I are both on the aged pension, and have struggled to maintain private health insurance. I live in a rural area which has no access to reconstruction surgery in the private or public system so I need to go to Melbourne. What worries me a lot is the gap fees if I have to go private because of the need to act fairly quickly. I would love to chat with anyone that can help me with information on how it all works and any idea of the cost process. Thanks
Makes me see red
I read, today, an intersting article on the ABC website about some of the issues faced by rural and regional people who have breast cancer or are at high risk of developing it. I'm not as remote as the woman who was featured, but even here there are struggles. One of the biggest issues is affordable specialist care. There are few, if any, public services and you do not always get informed about them. You get referred to the company that covers your region even if there are more affordable services within reach. I've spent ten years fighting this fight, and I know what the facts are. ABC interviewed an oncologist who agreed that, yes, there are unique challenges that lead to poor outcomes for county folk. Distance is one thing, cost is another. If you are on a pension or low income and have to fork out specialist fees that are well above the metropolitan rates it makes a shitty situation even worse. It is a pity ABC did not ask that individual what they, and their business, was doing to address equity of access for rural and regional people. I really do wish they had asked that. I wonder what the answer would be? Last time I asked a member of that business that exact question, in a public forum, the response was 'Be careful what you wish for, you wouldn't want to be waiting in clinics like the big public hospitals.' Really. Most of us have either money or time. You should not have to go into debt to fund services that are bulk billed elsewhere. This shit infuriates me.
