It’s time for the Friday Update
Hello everyone, Just in case you didn’t know I just arrived back from a wonderful European trip. It has been a big week getting back into the swing of things but it’s so nice to be home. There really is no place like home! Community Highlights We have 34 new members this week. Please welcome Breezer110, Joleanne, jo4053, maryb61, VickiT, sjberesford27, and all the other new members. I hope you find the information and support you’re looking for. There were 84 posts and 474 comments this week. Here are some good ones you might have missed: Never goes away does it - Rhopkins Moving forward finally - Tinanahotbread Long journeys - Karel01 Day 1 of 30 radiotherapy - Lyndajma BCNA News & Events Federal budget - To read more on BCNA's response to the Federal Budget click here. Pink Lady Match - If you would like to see the Melbourne Football Club take on the Western Bulldogs for an extra special cause you may like to join us on Sunday 15th May at the MCG for the Pink Lady Match 2016. For more information. Pink Sports Day 7th/8th May - Shane Crawford and he's wonderful boys are gearing up for a big weekend. To find out more information or to get involved click here. Image Source: Herald Sun Mums and dads are special everyday but this Sunday is Mother’s day. My mum and I have a very special bond. She does drive me nuts but I love her to pieces, so she will be getting some extra special loving this weekend. Here is a message for you all heading into the weekend! Ann-Marie x1View0likes0CommentsWorking my way to being informed
Hi, Its probably time to introduce myself, I've been lurking around for a few weeks gathering information to help me cope. I was diagnosed with TNBC a few weeks ago, luckily the tumor was tiny approx 4mm and hadn't spread. I still chose to have chemo (4 cycles of TC) followed by radio therapy to minimise the chance of it coming back. I handled the surgery pretty well, not surprising given the tumors size and I start chemo tomorrow. So far the worst part is waiting. I combat it by finding out as much information as I can. That's my training and my profession. I've seen a lot of warnings about Dr Google and if I have time I'd like to collect some links to help members who don't have my background to improve their information literacy - these are skills that help you sift the good from the bad. I'll say thanks to everybody who's posts I've read so far - it has really helped me! Simone1View0likes3CommentsMedia opportunity: Did you choose not to have radiotherapy due to travel/distance?
Hello, I am looking for women in regional or rural NSW and Victoria who opted NOT to have radiotherapy to avoid spending long amounts of time away from home and their family. I have been appoached by Daily Telegraph newspaper in NSW who is working on a campaign around rural health. They would like to focus on poor access to radiotherapy in rural and remote areas. The journalist I am working with is keen to speak to women in NSW or Victoria who opted to undergo a mastectomy (or double mastectomy) to avoid radiotherapy and having to spend weeks away from home. Ideally they would like to speak to someone this week. If this sounds like you and your comfortable sharing your story, please email media@bcna.org.au Alternatively if you know of someone who meets the criteria, please encourage them to get in touch. It's an important issue and one that we are keen to help raise awareness of. Cheers, Laura - BCNA Media Manager1View0likes2Comments3rd generation chemotherapy drugs
Hi everybody Well this is my very first post now that I have come to terms with my diagnosis. Even though it seems like such a long time ago it was only 4 weeks ago that I was diagnosed with a grade 3 invasive ductal carcinoma after finding a lump in my breast. I am 44yrs old so right up until the pathology results I kept believing it would just be a 3.5cm benign lump. No such luck. I had my first meeting with oncologist last Wednesday and she has recommend I commence on 3rd generation chemotherapy drugs (docetaxel, doxorubicin, cyclophosphamide) on the 1st day and pegfilgrastim on the 2nd day. I am to have 6 courses of this every 3 weeks and then have 6 weeks of radiation. Has anyone else been on these 3rd generation drugs as I woud appreciate your input on how you found these drugs. My oncologist has told me these are the drugs I most likely to get most side effects from. I wasn't worried about surgery or pain but the idea of what chemotherapy will do to my body scares me. I do plan to keep working even though I've been told this will be unrealistic. Anyway its great that a group exists for this breast cancer and I look forward to being a part of it. Theresa892Views0likes6CommentsCome a long way.
I've just reread my one and only post, and my word, it feels like a long time ago. It seems like a whole life has gone past in the last nine months. The panic attacks lessened after the initial shock. Then the six sessions of chemo were the hardest thing I've ever been through. A mastectomy, followed by eight weeks of an infected seroma. Today is the last day of six weeks of radiation . I've not posted, but this site has been invaluable to me. Whenever I was in need of help, there was always somebody going through the same emotions, who were brave enough to write about it. Thank you ladies. I am in awe of you.11Views0likes5CommentsWill you ever feel normal again? YES!
For anyone wondering whether they'll ever feel normal again... Found a lump in January this year; mastectomy in March; diagnosed grade 3, stage 3 (tumour 65mm); chemo (8 sessions, April-August); radiotherapy (5 weeks, finished 01october). Tomorrow: running 10km in the Race4Life here in Adelaide!31Views0likes4Comments