Mastectomy/Diep flap reconstruction - What to prepare for
Hello, I am heading into hospital shortly for a Mastectomy with a DIEP flap reconstruction at same time. I am starting to prepare everything now, ie stocking freezer, ensuring I have everything at home ready and staying to look at what to pack for my stay in hospital (5 days). My Plastic Surgery has asked that I bring in post op bra and if I have spanx or similar bring that in. The bra was no issue I got ones from Kmart and Berlei. In terms of compression pants, I am at a lose. So much on the market, Any recommendations, do I go for underwear type, shorts or just stomach ones. I would be grateful for any tips.
Partial mastectomy & Tdap flap experience
Thought I would share my experience here for future users as I didn't find many examples for partial mastectomy and Tdap (thracodorsal arterial perforator) flap reconstruction. I was diagnosed at 43 with stage 1 idc of 3.5cm in my right breast. It was found in my first ever mammogram which I only had as baseline because I was starting HRT for perimenopause. Thank god it got caught early. My Surgeon was very thorough and ordered CT, bone scan and MRI, which didn't show any spread to lymphs or beyond. The tumour was located at about 10o'clock between the nipple and armpit. Due to its largish size of 3.5cm the Surgeon recommend partial mastectomy but indicated would be able to spare my nipple and key sensation nerves. Understanding the options available to me was really important including the pros and cons of each. In particular I wanted to understand options that would maintain sensation. My breast surgeon put me in touch with the plastic surgeon to talk through options. I strongly recommend you ask for this consult if it isn't offered to you. Given the size and location of my tumour if I had opted for a reconstruction only the breast size would be very small, and then I would have needed to consider reduction of the healthy left breast for symmetry. The Plastic surgeon identified I was a good candidate for a TDAP flap reconstruction as part of a single surgery. While there are some risks a flap might not take, I felt it was the best first choice option for me. And I was positive that if everything went well I would only need one surgery rather than subsequent later reconstruction surgeries. Involving both breast surgeon and plastic surgeon did add a few weeks and a number of appointments to the first month after diagnosis. Luckily for me with my particular diagnosis the surgeon wasn't concerned it would impact on my prognosis. I am very aware how lucky my circumstances have been to allow me these choices. My surgery was about 4 hours I'm told. The breast surgeon removed the tumour, x-rayed to check the margins and then handed over to the plastic surgeon. In the end the flap needed to be taken from between Tdap and ldap area on my back close to my armpit area in order to have suitable arteries for blood connection. 1 lymph node removed. Thankfully when I came out of surgery I didn't have any nausea and ate a meal that evening! I was in hospital for 6 nights afterwards as you have two drains for flap surgery and the plastics team like to Closely monitor the flap and drains. The main discomfort I had for first few days was a sore shoulder because my arm had to be above my head for the four hours surgery. So anti-inflammatory cream was in high use. I was able to walk from day 2 and pretty much just on Panadol for pain. The bruising all over the entire breast was epic so arnica cream was essential. After 6 nights in hospital I was allowed to go home with my drains and have daily nurse visits to check. I also had direct mobile number for my specialist nurse if I had any questions. Being home in a quiet bedroom was a relief after the noisy nights of hospital ward. Currently on day 10 post surgery and still have the two drains, although I think they will be out in next few days. Flap surgery can also mean longer period of recovery before you can drive-up to six weeks. Although that is very individual and I'm hoping I might be able to drive in another week or so. Still early days but thought I would share my experience so far. S
One is BIGGER than the other!
Hi I had an early diagnosis and lumpectomy, chemo, radiation and follow up treatment of right breast in 2003 (aged 45 years). As I've aged, my treated breast is shrinking and shrinking and shrinking and is now very obviously a different size to my left breast. 1 Has anyone else experience this? 2 Do you think it would be considered 'medically necessary' surgery if I wanted a reconstruction for health fund purposes? Appreciate any feedback - thank you so much.
Neoadjuvant PLUS adjuvant chemotherapy?
Hi everyone, As my wife's neoadjuvant chemotherapy draws to a close we've been looking more forward to surgery / radiation, however her breast care coordinator dropped a new bit of information last week that, depending on the pathology of her tumour, she may require additional chemotherapy after surgery. This was a bit of a bombshell, since it's the first time we've heard anything about this being a thing and although the coordinator said that "it's a good thing, since it gives us more options", it doesn't feel like a good thing. We've been steadily working through this process for the last 4 months assuming that we'll get to the finish line and be able close the book on chemo and move on, but now it looks like we have an uncertain pathway again. I'd love to hear from anyone who's had this experience of getting through months of neoadjuvant chemotherapy only to find out that they needed more after surgery. What were the circumstances that drove that decision and what did the adjuvant portion of chemotherapy look like? Was it months of the same again, or a different regime? I get that everyone's different and your circumstances may not be exactly the same, but I'd appreciate any input so we can feel more informed and plan appropriately. Thanks! George
Healing Time
Hi everyone. I am new to this group. I had mastectomy around two weeks back. It's really sore and I have limited arm movement. It feels like my skin is glued to my chest wall. Any movement cause uncomfortable stretch. I would like to know how it has been with other group members. How long does it take for inner stitches to heal? When were you able to move your arm and body like normal without pain? I also have like balls under my arm which is really annoying. Can anyone suggest what they have done for that. Has any one taken any special food to heal faster? I have so many questions. Please help. Thanks
DIEP reconstruction
Hi. I am just wanting to hear how other people's recoveries have been after DIEP reconstructive surgery. I had surgery in July last year. I ended up in ICU for 10 days the week after with an infection in a lymph node in my groin. I became septic and nearly died. I have experienced nothing but discomfort since. My stomach feels like I have a knife or razor blade inside, trying to cut me from the inside out. I still have pain in my chest plate and I'm in pain in numerous places when I press on numerous areas on my reconstructed breast. I am due to have the last lot of surgery to remove the petal and make adjustments etc but I am very nervous and anxious about going through any more surgery.
Sore lump after surgery
Hi everyone One week after lumpectomy (removal of 5 smallish carcinomas from right breast and one DCIS from left breast) I had the bandages removed by my surgeon and she noticed I had a very large painful hard lump in my right breast which was a result of the surgery. I am looking for advice on how to treat this. I'm pretty certain she said to massage it, but that does not seem to be making any difference. Has anyone else had the same thing happen? What did you do and how long did it take? Thankyou!
