Newly Diagnosed & Over Thinking it all!
I'm a 54 year old women of 3 gorgeous grown up sons living with my partner of 5 years & loving life after a few years of turbulence both personally & professionally. I am newly diagnosed with invasive NST, + for both ER & PgR apparently that's good, yesterday was a week after right boobie lumpectomy & 3 x axillary lymph nodes removed and results show its travelled to the lymph nodes so pet scan booked for next Tuesday. Its been a roller-coaster, which I know many of us have experienced and my positivity since surgery is now replaced with a sick to the core feeling of dread. Which is unusual for me as a normally face everything head on but this has got me. Radiotherapy has been mentioned and then yesterday chemo was mentioned for the first time as a most likely scenario not all results were back & the rest awaits me next Tuesday. My head space at the moment is like a magpie flitting from shiny wtf-ness to omg-ness!! The cherry on the top is I'm 2 months into a new career and on LWOP from a 34 year career wondering what my new employer who has been very supportive will wonder & yes I am over thinking it :)
Here's to all the test's we have to have - a wee jingle I made up - cause well we have to find some
So as some of you may know I'm still going through my second round of breast cancer, and still under going all these tests that my medical have put me though, today I chose to go through my I-Med radiology app to look over how many different producers I've been booked for, and gone through, and I came up with this wee jingle I could turn this into a new version of a Christmas song : you know the one “On the first day of Christmas my true love gave to me “ Well in here goes this wee tune "On my second cancer diagnosis my medical team gave to me " 4 cannula’s into the veins for all the contrast dies 3 breast ultrasounds 3 biopsy ( one double, one triple, then a single ) 3 mammograms 2 MRI’s 1 PET Scan 1 MRI guided biopsy 1 genetic test for family history And still no surgery Now tell me you just didn’t sing that tune in your head hopefully that put a smile on your dial , as we try to stay positive and support one another this October, breast cancer awareness month Happy Saturday every one hopefully my medical team will soon know when they want to do the surgery ???
To scan or not, that is the question!
Hi lovely ladies. I’m seeing my oncologist tomorrow for chemo and radiation regime. I asked him about getting a PET scan before and he advised it could give false positives and doesn’t recommend. It’s been playing on my mind for weeks. So question...... I’ve had my lumpectomy Triple Negative Invasive ductal carcinoma stage 1B Grade 3, no nodal activity. If I don’t do a PET scan, how do I know it hasn’t spread elsewhere through blood system or another node. Won’t future scans to check the chemo effectiveness just be looking at my breasts? I’m guessing the usual monitoring is look out for symptoms. That’s going to be a pain because I’ve always suffered from strange pains everywhere. I have early osteoporosis and pretty bad herniated disks, hiatus hernia. Goodness it’s going to be hard not to stress out knowing if somethings new or the usual. i wish we could do a POLL on who did full body pre scans. Any advice or should I just suck it up and follow the advice of my oncologist? Thanks xx