Nerlynx
I am Her2+ and E+. I have just finished 12 months of chemo, radiation, last Hercepton on Thursday and ongoing Letrozol. Adding Nerlynx to the list of treatments has been an option for me however my oncologist has just let me know that it now no longer available for free on compassionate grounds by the company. It is being subsidized I believe but I would still have to pay $18000 for the year of tablets if I am eligible. The side effects sound awful :( I would love any feedback from anyone who has been on Nerlynx as to the side effects and thoughts on this.
Good news for some .................new drug
NERLYNX^® (neratinib) now approved by the Therapeutic Goods Administration for Australian women^2 · Leading Australian breast cancer oncologist says this is a 'huge step forward' for Australian women · Five-year data shows NERLYNX reduces the risk of invasive disease recurrence or death by 42% in women with early-stage, HER2+/HR+ breast cancer^3 · NERLYNX now available to eligible women at no cost in Australia via the NERLYNX Access Program The drug, NERLYNX (neratinib) is an oral medication taken for 12 months by women with early stage HER2-positive (HER2+) breast cancer. It is now TGA approved with the following indication: *"NERLYNX is indicated for the extended adjuvant treatment of adult patients with early-stage HER2-overexpressed/amplified breast cancer, to follow adjuvant trastuzumab based therapy."^2* The greatest benefit is seen in women who are hormone-receptor positive (HR+) and who initiate NERLYNX therapy within 12 months of completing trastuzumab based therapy. Their five-year risk of recurrence or death is reduced by 42% after completing 12 months of NERLYNX therapy.^3
Trial Drug
Hi All, So was with oncologist on Monday and was offered to go on a free trial for a new drug. Just wondered if anyone knew anything about it. It is called Neratinib. Apparently it has been released in the US. Trial approved but not funded in the UK and same in Australia. It’s for women who are oestrogen + and Her2+ and it’s supposed to lesson my chance of recurrence but only by 5%. You take it for a year apparently and side effects can be pretty rough. Would love to hear if you know anything more about it xxx
