Chemotherapy
i had a a bilateral mastectomy 3 weeks ago today, the cancer was lobular carcinoma. At 7.5 centimetres. The surgeon told me I would need radiation and I would have to take hormone blockers as it was estrogen positive. I saw the oncologist yesterday and he is suggesting chemo, he said he’s not insisting but suggesting I do it. I have diabetes and also suffer diverticulitis which is a bit tricky, but can be dealt with he said. When I read all of the side effects that I could get I almost took fright. According to the tests etc I have a 10% Moore chance of the cancer not returning if I have the chemo, radiation and hormone blockers than if I don’t. Has anyone been through this and is chemo as bad as they say. I would like to live a full life as long as possible. Anyone out there able to help.
Invasive lobular gr 2.. best treatments?.
Hi I am getting mixed msgs from my breast surgeon. At the beginning of all this I was told I was unlikely to need radio or chemo. Then it changed to prob need radio. Then it changed again to radio not as necessary but I may need a short course of chemo. Then today when I saw her replacement (she is now on mat leave), he said that if I were his wife or sister he would want me to do both!! Oh and on top of all this I am told that invasive lobular is most responsive to hormone suppression (which I haven’t been offered yet and is in the pipeline for after treatment.. thinking it should be sooner?...) I now have my pathology and turns out I have gr2 invasive lobular er+ and moderately prog+ but her-. Tumour was cleared with clear margins but was close to chest wall (hence considering radio). Was 4.8mm and only found in 1 sentinel node .8mm. I was told chemo is recommended for tumours over 5mm and in 3 nodes... so I am borderline.. Surgery so far has been sentinel node biopsies followed by double mx with skin sparing and direct to implant. Right nipple was taken but found to be cancer free (I feel a little ripped off about it) and left breast tissue was completely clear of cancer, but dense tissue so hard to screen. My concern is that I have had all cancer chopped out as far as anyone knows and that they are recommending the works because I am 40 and in good health. I want to stay in good health and am concerned about the impact of unnecessary treatment. I have also been told that invasive lobular doesn’t respond particularly well to chemo anyway... To confuse matters further another surgeon who looked at my results but doesn’t know me (he treated my mum) said that radio is unwarranted but that I should have chemo... Has anyone else had similar issues?
Letrozole
just need a little reassurance.... I was diagnosed with lobular carcinoma her 2 positive nodes positive on oct 2015. Now I am on letrozole, the balls of my feet feel very sore when I get up in the morning or when off my feet for a while then I stand up. Unsure if it is a side affect of the tablet or chemo ?? is there anything I can do to make it less painful