D4 post lumpectomy itching
Hi everyone, I was diagnosed with ILC R) breast hormone +ve, HER2-ve at the start of April. I'm D4 post op lumpectomy and sentinel node bx. I have a follow up appointment next Monday. Pain has been manageable, but today I've noticed my breast is so itchy and I had some shooting pain. I can't see a rash but honestly it's hard to tell with the bruising. Did anyone else get this? Did anything help? Im curious if it's the nerves trying to heal. I'll need radiotherapy, so also keen for any tips to prepare for that. Thanks xox
Do you have ILC? Excellent info in this link & consider joining the ILC Private Group
Even if you have ILC & aren't in the ILC Private Group (and I'd recommend you join, as targeted information is posted there for members) this is an article that, if you have ILC, I believe you should read this link & even download it, to read again later on. If you know someone with ILC, feel free to pass this info to them. Also - consider subscribing to the Lobular Breast Cancer Alliance, as they will keep you up to date with the latest data, trials and all things Lobular. https://lobularbreastcancer.org (Tomorrow is their Global Lobular Breast Cancer Awareness Day - from 1pm (Brisbane time - they are not on Daylight Saving!) you can join the LIVE zoom group by activating the QR Code below. Below is the link to the excellent article (mentioned in the title) on ILC that you can read online or better still, download as a PDF to check out whenever you want to. Although invasive lobular cancer is not as common as its ductal counterpart, it warrants specific attention, and a whole section of its own, because of the distinct biological characteristics that affect symptoms, diagnosis, and therapeutic strategies. ILC as a breast cancer subtype continues to pose a challenge in terms of accurate clinical diagnosis, due to its unique histopathology and clinical biology. A hallmark feature of classical invasive lobular breast cancers is that the tumours grow in single-file strands rather than the more common “lump” seen in invasive ductal breast cancers. Re Progression: An important difference between ILC and IDC is their pattern of metastatic spread. While both IDC and ILC commonly metastasize to lymph nodes, bone and liver, ILC demonstrates a predilection for metastases to the peritoneum, retroperitoneum, and hollow viscera (including the gastrointestinal and genitourinary tracts). https://www.melbournebreastcancersurgery.com.au/wp-content/themes/ypo-theme/pdf/infiltrating-lobular-carcinoma-18th-july-p1.pdfILC Awareness Day in Brisbane, Oct 15th
Global Lobular Breast Cancer Awareness Day in Oct All around the world in October, is the 2nd annual Global Lobular Breast Cancer Awareness Day- with events planned around the globe including in 9 US states plus Australia, Brazil, Ireland, the UK, and the Netherlands …. with more being added!! So if you know anyone in these countries with Lobular BreastCancer, get them to check out the various events. Click the link below - for info re events around the world. https://lobularbreastcancer.org/events/ to see what’s happening in 'your' area and check back as more details are confirmed! Events include presentations for clinicians and researchers, forums for patients and their families and awareness raising by LBCA advocates distributing educational materials on ILC. The Australian event will be in Brisbane on Oct 15th https://lobularbreastcancer.org/event/lobular-breast-cancer-awareness-day-in-australia/ Registration should be available soon .....BreastScreen NSW now to advise of Breast density
Nine News, this evening, advised that BreastScreen NSW (BSNSW) will be advising clients of their Breast Density from now on and the risk is poses - and this should hopefully result in earlier detection of breast cancer in women who have Dense Breast Tissue. Only Tasmania, Qld and Northern Territory now, do NOT advise of Breast Density in Australia. BCNA's Vicki Durston was also interviewed. (It should be available to view on Nine News shortly.) Dense Breast Tissue is often associated with younger women - but I was in my late 60s, when diagnosed - hardly 'young'! 😉 Dense Breast Tissue shows as 'white' on a Mammogram - as does many BC Tumours. WHITE ON WHITE = INVISIBLE! My own BC (Invasive Lobular Cancer) - and many more members - was missed by the BreastScreen Bus in my NSW home town, just months before my GP detected it when she checked (even tho I'd told her my Screening was clear!) ..... I was called back for 2 more screenings (told there was a problem with the initial screening) before a biopsy was suggested - which showed my Tumours. It is particularly important for those with Invasive Lobular Breast Cancer - as it doesn't show as a 'tumour' as such ..... is it more 'strand like' and is even MORE difficult to identify in a mammogram. This confirms that BC tumours do NOT necessarily show on the mammogram - especially if Rural/Regional/Remote women are relying on BreastScreen Buses ... which do NOT have the latest 3D machines/tomosynthesis on board the buses. 🙁. If YOU live in rural/regional/remote areas .... make sure you advise your daughters/sisters/any female to get checked at a PROPER radiography facility & do NOT just rely on the BreastScreen Buses! From age 40 (not age 50 as BSNSW continues to advertise!) There is NO upper limit either .... so if you are older than 74 - make sure you ring & book, every 2 years! Women with Dense Breast Tissue should be advised to have an Ultrasound and possibly an MRI to identify if there is an issue - with a biopsy to confirm the presence of BC.
