Online Network Survey - Results
Thank you for taking part in our digital research As some of you may know, we need to move the Online Network to a new platform, as part of a wider project to improve our online resources. We ran a survey and conducted interviews with members of the network to gather information such as: What works well and what needs to be improved What features and functions are most important. Thank you to everyone who was able to take part and provide feedback on their experiences with the current platform. Your feedback is helping us make decisions around features and functionality (Survey results attached). The project team is busy working with our technical partners. This is always a lengthy process, so you won’t see any changes for a couple of months. However, the project team will very soon start communicating with our network before the upcoming changes. If you have any questions or future feedback, please let us know via this post or through our Helpline team.81Views1like1CommentNew Group - Triple Negative Breast Cancer (TNBC)
Hello members, If you have been diagnosed with triple negative breast cancer (TNBC) or supporting someone with this breast cancer type, you may have asked whether we have a private group available for people. Currently we do not have a dedicated group, however there appears to be growing demand for this and we want to create the conversation: Please provide feedback as to whether you feel you or someone diagnosed with TNBC would benefit from having access to an Online Network private group (Please leave your comment in this discussion thread) What is Triple Negative Breast Cancer? Triple negative breast cancer is the name given to breast cancer that is: oestrogen receptor negative (ER-) progesterone receptor negative (PR-) and HER2 negative (HER2-). This means that the cancer does not use oestrogen, progesterone or HER2 to grow. So this means that drugs used to treat these types of breast cancer are not effective for triple negative breast cancer. Around 15% of early breast cancers are triple negative. The main treatment for triple negative breast cancer is chemotherapy. It is important to know that chemotherapy can be very effective in treating triple negative breast cancer. While anyone can get triple negative breast cancer, it is more common in people who: have an inherited BRCA gene mutation (particularly BRCA1) are under the age of 40 have not reached menopause. Unfortunately triple negative breast cancers tend to be more aggressive than other types of breast cancer. There are several sub-types of triple negative breast cancer, the most common being, a cell type called basal-like. Basal-like means that the cells resemble the basal cells that line the breast ducts. Basal-like cancers tend to be more aggressive, higher grade cancers. Read more via the My Journey article Triple negative breast cancer191Views0likes8CommentsPodcast Survey Upfront About Breast Cancer What You Don’t Know Until You Do (Dr Charlotte Tottman)
Hi everyone, We hope you all have been enjoying our 10-part podcast series, Upfront About Breast Cancer - What You Don’t Know Until You Do, with Dr Charlotte Tottman! BCNA values your feedback, and we want to ensure we continue to develop podcasts that are relevant to you, our members, and your breast cancer diagnosis. To be able to do this, we have created a survey which explores how the podcast series has currently helped you, and what you’d like to see more of. Please note, the survey is completely anonymous. https://limesurvey.mq.edu.au/index.php/157549?lang=en123Views1like1Comment