2021 International Invasive Lobular Breast Cancer (ILC) Virtual Symposium-Videos of the discussions
I've put this in the Invasive Lobular Cancer Group - but I know that others may be interested in these videos as well ...... The June 2021 International Invasive Lobular Breast Cancer (ILC) Virtual Symposium was held recently - with lots of videos with different experts in Invasive Lobular Cancer. Over 740 physicians, researchers, patient advocates, patients with ILC from 36 countries participated to learn about ILC and discuss the most current research underway to better understand this unique disease. The Symposium showcased rapid progress in lobular breast cancer research with an agenda that featured presentations and discussions tackling challenges and opportunities that are ongoing in ILC diagnostics, imaging, biology and treatment and the growth of patient advocacy organisations ready to support the research. I've only watched part of the first one, (Skip the first 4 mins - they had a problem with muting!) but it looks good ... I hope the others are too. http://ilcsymposium.com/?fbclid=IwAR1Ic9GrPfjNqMhioNL7Ac1VivPIkD2nQK6D6cg3Bo4Yq-3Kn4I2ETycfXo
Prosigna testing
Has anyone had gene testing such as Prosigna and how has it guided you in treatment decisions? How have you judged a low risk of recurrence and would you decline any element of common approaches to treatment (chemo, radiation, endocrine therapy?) as a result. Discussion on this site suggests to me that all of the hormonal treatments (Arimidex?) have horrible side effects that I would love to decline.
Weight!!! Non exisitant metabolism - hoping to find someone like me!
hi ladies, I was diagnosed with stage 3 estrogen positive BC three and a half years ago start of 2015. Whilst I was finishup up my treatment (surgery, chemo, radio, exmestane, more surgery), my thyroid stopped working and I was then diagnosed with Hashimoto’s thyroiditis, they are not sure how/why it was brought on. Then after all that I was diagnosed with the BRCA 2 gene a year and a half after my initial diagnosis so after having an initial double mastectomy, I then had a preventative total hysterectomy and oopherectomy and take an estrogen blocker for 10 years so I really dont feel very female anymore :( I went into a chemical menopause in 2015 and then in 2016 I went into a surgical one. All of this happened in my late 30’s and my weight has really suffered for it, as a result I have very bad self esteem and it also does not help my husband cheated on me with two of my friends after I was diagnosed and just 6 months after we were married in 2016, we have a little son so I’ve stayed - it’s a daily battle for me though. My metabolism is non exisitant and so I am hoping to find other women with the same make up of ‘issues’ as me (without the infidelity) to see how they are managing. is there anyone out there with: 1). estrogen positive breast cancer 2). that’s had a total hysterectomy, 3). that has hashis 4). is on an estrogen blocker? praying there is.....