DCIS - Breast marker missed in initial surgery
Hello, I was recently diagnosed with intermediate grade DCIS left breast presenting as a stellate lesion (1.4cm), apparently the usual presentation is calcifications. I had a wide local incision just before Christmas to have it removed. The surgery went well and I was very happy with the incision/surgery (done by a private breast cancer specialist). The scans I had before surgery were mammogram, ultrasound and an MRI. A breast marker was implanted at the time of the biopsy with Breast Screen. I went back to see the specialist last week and the pathology was showing that there was no breast marker in the tissue removed and also no DCIS in the pathology sample. He sent me for another mammogram, that was very uncomfortable I must say on a breast that has just had surgery! Long story short the recent mammogram showed that the breast marker and DCIS wasn't removed at surgery it had been missed, I'm booked in for the exact same procedure all over again this Thursday. I'm so upset that I have to go through another general and have the surgery all over again, plus I've been a mess just waiting for the results the first time around. That's been the worst part of this whole journey so far. I've spoken to the specialist about my concerns but I'm not really satisfied with his explanation. Also this is my second time dealing with cancer 23 years ago I went through surgery/chemotherapy and had to have an emergency hysterectomy. Going through this journey all over again is bringing up a lot of bad memories. Has anyone else been in this situation? I'm just feeling so deflated atm.
Good-bye boob photos - your ideas?
I've spent a month wrestling with the information about DCIS, and my decisions about what to do next. Starting with a flyer for the BCNA, given to me by BreastScreen NSW, that seemed to indicate that DCIS is not straight-up, bald-faced cancer. I spent the first 2 weeks after diagnosis trying to get my head around concepts and terminology. Is it life-threatening? No. Does it mean you're more likely to get invasive cancer at some point? Yes. Can you sit on it, and see what happens? Yes, if you like playing Russian roulette. The next 2 weeks making appointments with specialists... A breast surgeon: get it out. A plastic surgeon: we have marvellous folding tables and can recreate your boob from other bits of your body. For my A-B cup delights? No thanks, way too much hassle. A doctor who has had a bilateral mastectomy: you don't want to deal with radiotherapy and chemo, get it out. My doctor friend who uses complementary therapy: it's about survival, and you're young with a lot of stressors in your life, get it out. A breast surgeon and top-level researcher: we can't force you to do anything but getting it out is the best idea. And so the expert consensus, even though I feel fine, I am potentially fine, and I may remain potentially fine, is that I should cut out my very small boob - including the 6.1cm of low-grade DCIS - and get on with it. So that is what I've lined up for later this month, even though a vain and fatalistic version of myself is writhing around inside me, clammering for attention so I can hear it scream STOP. On the pro-mastectomy side: - I'm small-breasted so this is not such a big deal in terms of lop-sidedness - Survival, maybe - I can take up archery with fewer complications - Maybe it's time to go #braless4ever On the con side: - I'm cutting out a boob - Scars, pain and zombie-time - Dressing myself might be a bit of a nuisance So you see, there are more pros. Anyway, as part of saying goodbye to my booby, I've planned a pre-surgery photoshoot. Candid, B&W, naturalistic in my home. Does anyone have any ideas for poses, props and backgrounds that would work? Or good places to look for inspiration? I've tried Google-Imaging but I don't like to spend too much of my life scrolling through porn sites... which is what happens when you search terms like topless, semi-nude, female body art. B) :s Thanks in advance!
Recurrence
Hi There, I'm posting my story on here as I am feeling lost - my family and friends are really supportive but I just don't feel understood. In 2015 I was diagnosed with low grade DCIS - my treatment was mastectomy, SNB with reconstruction in February 2016, followed by a prophylactic mastectomy of my remaining breast in November the same year. Based on my pathology and treatment, recurrence was a low risk. However last month, when I had my annual appointment I had a FNA on a lump which I was told last year was a cyst. Pathology suggested malignant cells so I was rushed in for scans - fortunately, there were no metastisis but I had surgery to further excise the tumors and another SNB. 3 days after my surgery I was readmitted for a second operation as there were 2 tumors identified (8 and 5 mm respectively). The second operation removed all of my skin (first mastectomy was skin sparing) and revealed a 3rd tumor, 4mm. Pathology was ER/PR+, Her-, micro mets to one lymph node. I will undergo radiotherapy but no chemo. I also found out yesterday that my bone scan revealed a benign hyperostosis on my skull and my surgeon has told me she isn't worried but wants a CT scan in a few months to check. After 3 weeks of scans, testing and surguries, and the additional worry now that the benign hyperostosis is actually a metastasis I am just at a low - for a disease that I thought I had treated 3 years ago I'm now left wondering (obsessing) about another recurrence. I just feel like I'm being denied a life but really I should be out there enjoying every minute of it. I have 2 gorgeous boys and a wonderful husband and it is so hard to see them deal with the events of the past 3 weeks. My surgeon has said that she hasn't seen a case like mine before so I feel quite isolated and scared. I've always been so healthy and now I feel like this will never end.Very Hopeful
Diagnosed DCIS 10th August, I saw a surgeon yesterday and have now booked the hospital for the 3rd of September. I have decided to only have the involved milk ducts removed. Hopefully there will be a clear line around and I will not have to have radiation. The surgeon was talking about breast reconstruction on the day as well, I have decided to only have the cancer removed as everything else is in the too hard basket at the moment as I have had two major surgeries in the past 11 months. Well wishes to all those in the same situation as myself.:)
DCIS question: Does a core needle biopsy break the duct and cause the cancer to spread?
Last Tuesday I was diagnosed with Ductal Carcinoma In Situ (DCIS) breast cancer in my left breast. I have had two core needle biopsies on my left and right breast. I'm still waiting for the results from the biopsy on my right breast. I have an appointment with the breast surgeon tomorrow (Monday). I'm worried that the biopsies have damaged the duct wall and caused the cancer to spill out of the duct into the breast. Does a core needle biopsy break the duct and cause the cancer to spread? The radiologist who performed the second biopsy was very rough, and he inserted the needle at least six times into my breast (there are six holes/scars in my breast). I live in Victoria and I'm a public patient. My local hospital is terrible and I don't feel supported by the breast surgeon. She is very unprofessional. I'm afraid that I don't have the same chance of survival as a private patient who can afford to see a breast surgeon of their choice. I'm terrified that the cancer has spread because of the biopsies.
Still struggling with the word pre-cancer after DCIS mastectomy
I was diagnosed with low grade DCIS in my right breast in Nov 2019 and had a mastectomy in Jan 2020. I am 38 years old. I saw 2 specialist and both recommended a mastectomy because I am small breasted. Had an expander put in, awaiting for reconstructive surgery which has been postponed due to covid19. I am now clear without needing further treatment. My surgeon/breast care nurse/GP all refer to DCIS as pre-cancer and I struggle with this immensely because I need to feel that the choice I had made was justified and worth it. I lost my breast, it may be small but it was mine. This is not just about losing my womanhood, I felt I lost a part of me that made up the person I know myself to be. Because of this word I don't feel like I have saved my life, I didn't even have cancer. I know I should be grateful that I didn't have to go through radiation or chemotherapy or take any meds but to me a mastectomy is a very drastic treatment. How do you even explain it to other people? Nobody knows what DCIS is unless they have it, do I say I had pre-cancer? Is it wrong to say I had breast cancer? 5 months on and this is still keeping me from moving forward. At yesterday's Psychological Impacts webcast, someone asked Dr Tottman this very question and I was basically yelling at the screen "this is exactly how I feel!" So I now know there are others who are just like me. I hope to hear your stories and thoughts about how you are dealing with this particular issue.public system or private health insurance?
I am 55 and just got diagnosed with high grade DCIS (2 lesions, one with focus suspicions for micro invasions, lymph node U/S FNA - Negative). the hospital gave me a referral for their breast surgeon for mid December but also notified my doctor. My doctor called me and asked me to come in for a chat and she wants me to go private so the mastectomy can be done before Christmas (which most likely can't be done in the Public Hospital, they start with surgeries again on the 10th of January). I am now really confused what to do, while I would love to have the surgery out of the way as soon as possible, I am worried with GAP payments if I go private. I don't have yet an appointment for the private surgeon but my doctor reckons I could get one for this coming week. while I am extremely lucky that I was diagnosed early, it's still a shock and I am confused and worried. if anyone could let me know about their decisions and costs for GAP payments, I would really appreciate it. thank you :)
