User Profile
Rona
Member
Joined 2 years ago
User Widgets
Contributions
Re: Struggling through Chemo
Hi everyone, I’m keeping up on here with everyone’s progress which is sounding great. Glad you managed to get on with the abemaciclib treatment Katie after the dose was halved. Can I ask when the symptoms got too bad that you needed to stop? Also have you had to have the zoledronic acid infusion? I know Coastiejas did and had the flu like symptoms for a few days. How are you going with that Coastiejas? I was scheduled for the zoledronic acid infusion yesterday and after 2 hours of waiting, deliberately and 2 hours of driving there ( yes, that’s me Katie…. thanks for your empathy 😊), I didn’t get the green light as I have serious symptoms of tmj ( problems with my jaw on one side). I now have to go back to the dentist for further investigation 😩. Ive been taking abemaciclib now for 4 days accompanied with letrozole (still waiting for a hot flush 😂). Ive had to buy a bigger pill box 😂. I’m also taking vit D, Calcium, Magnesium and Collagen. I’m scared at times, laugh about it, share my experiences with colleagues, don’t want to swallow all these pills, don’t want to repeatedly do my exercises but am grateful for so much more. Im still losing weight (used to be something I wanted 😂), now I just want to try and maintain it. Anyone else had a dramatic weight loss? Thanks everyone for sharing your journey, it really helps ♥️11Views0likes0CommentsRe: Struggling through Chemo
Hi everyone, was thinking about you all today and wondering how you all are. Haircuts are back in fashion, half dosage deodorant and what about a fluffy face 😂. I bought myself a face de fluffer (little round shaver) and I absolutely love it! I highly recommend it. Coastijas, sorry to hear about your experience, is this one of the side effects? I’ll be going down that path soon too, I’m yet to start the abemaciclib. Glad to hear you are coping on it Katie. From what my oncologist said, diarrhoea is the main symptom. My hair is growing thick, fast and extremely curly. It’s also black and white!!! I have to control the curls with product……. never in my wildest dreams could I have imagined this. I haven’t had any hot flushes on the letrizole yet?? I must say though, like you Katie, my stomach hasn’t been the same since chemo. I still have numbness and tingling in my feet, often creeping up to my thighs. I’ve read this can be permanent damage from the Paclitaxel, it’s something I have come to terms with. I had my first mammogram last week, passed with flying colours 😂. I do however still have a large lump under my arm from scar tissue. My measurements started to go up so I’m working hard on my exercise regime to keep the fluid from building. I see the surgeon next month and we are going to discuss surgery as she thinks this is causing the fluid not draining, also have come to terms with this. Christmas will be a better time for us all this year, hope you are making plans to spend time with your family’s. I have Christmas Day off this year, first one in 9 years! I think I deserve to have Christmas at my place 😊 Take care every one 😊8Views0likes0CommentsRe: Struggling through Chemo
Hey Katie, it’s all relatively minor to the AC treatment in my mind but it does appear to be getting worse for me. It’s a very weird sensation, not painful and it doesn’t stop me doing things (no falls 😂), that question always makes me laugh when visiting the Oncologist. I work in Aged Care……. When does it change from “falling over” to “having a fall?” 😂, there’s a big difference 😂 Hope you enjoyed your getaway.14Views0likes0CommentsRe: Struggling through Chemo
Hey Cranky Granny, interesting your treatment stopped due to peripheral neuropathy. My taxol treatment stopped and started due to this (although I finished the 12 rounds). I was told it could get worse after treatment and it definitely has for me (10 weeks since my last chemo). I haven’t mentioned it to my Oncologist but will next time I see her. How long did this last for you? My feet are affected the most, I can’t bear touching them! Showering, with the water hitting them is making showering an unpleasant experience now.11Views0likes0CommentsRe: Struggling through Chemo
Hey Cee Cee, congratulations on getting through that horrid treatment, that AC is a tough gig! Im sure you will find the Taxol so much easier, the side effects are so minimal as far as nausea etc goes. I never had anti nausea meds with Taxol, I did have antihistamines that the Clinic gave me prior to treatment (as in, on the day). Good luck.12Views0likes0CommentsRe: Struggling through Chemo
Hey Katie, thanks for that positive thought, I will switch those percentages around in my head right now 😊. My nurse advised me to take the medication at night, which I didn’t do as I wanted to know the side effects. Well I now take it late afternoon and it definitely helped and I’m really at ease with that. As for the bloating/ cramping, my Oncologist told me this would settle down in time. For me this is the worst side effect so far. Still waiting for a hot flash 😂, I’m always cold so was looking forward to them.13Views0likes0CommentsRe: Struggling through Chemo
Good morning Katie and Coastiejas…… what a beautiful morning here in sunny Perth 😊. Congratulations Katie and look out bell for you Coastiejas! I had a great experience with radiation and the team with loads of laughs. Coastiejas, I chose for my last song “Hair” by the Cowslips which they played and obviously wasn’t long enough for the duration of radiation so guess what they played??? 😂😂, yep, Maneater! You can picture it right….. lying there as still as can be, hands above my head 😂, there was so much laughter after that last treatment. Hugs all round and pics ringing the bell. My energy levels are dropping again now I’ve started the Tamoxifen. I am also experiencing extreme cramps/bloating making it hard to sit down. I saw the Oncologist yesterday so he said it’s all normal. I’m also back on the anti nausea meds as I’m nauseous after eating. My 8 kilo weight loss isn’t coming back anytime soon at this rate. Im having a bone density scan this month then back to the Oncologist to decide whether to keep on with Tamoxifen (along with another medication 😩) or swap to another drug (starts with an L). Im booked to see the surgeon and have a mammogram in October. It really hit me yesterday that this is now life long checks, docs and meds. The Oncologist told me there is a 10 percent chance of the cancer returning with medication, hope I’m not fighting a losing battle. I’m going to discuss having my other breast removed when I see the surgeon. The Oncologist said it couldn’t be an option at the time of my mastectomy as the recovery time would have been too long and chemo had to begin. I haven’t given up yet but I sure can see how easily it would be. I’ve taken the weekend off of work just to recoup and enjoy being “well…..ish”. Like I said, beautiful sunny day and I’m off to see my veggie garden 😊.6Views1like0CommentsRe: Struggling through Chemo
Hi Unicorn 3, so happy to read we have all helped here. I told my Breast Care Nurse that I started a page here and she often asks how it’s going. It certainly has been great for me, making me feel a sense of normality and being able to vent when I’ve exhausted family and friends 😂. Of course they all care but we are the only ones who truly understand. Hope Unicorn 3 has helped you with your questions Alfie 😊. For me having all my lymph nodes removed has been challenging with pain, but I have learned to keep up the exercises for the cording and keep using my arm even if it’s uncomfortable.18Views0likes0Comments
Groups
No places to display