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Kerry66
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Joined 9 years ago
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Re: To chemo or not to chemo?
I was neutropenic after round 1 of TC and I was so ill. 2 night stay in hospital. In regards to when my hair fell out exactly 14 days after my first round. As soon as it started to fall out I rang my hair dresser and had it shaved off (number 1) My Hair was thick and I had lots of it. I couldn’t stand the sensation of it falling out. I cried buckets the day of and the day after but then I accepted my newly bald head and had a henna tattoo done. It was my way of saying up yours BC.1ViewSign in to react to this post0CommentsRe: To chemo or not to chemo?
Hey Londog, I decided to have the chemo and started on the 13th January. I'm not gonna lie this has been the hardest thing I've been through and trust me like everyone I've had my fair share of tough times. My type of chemo was TC 4 cycles 3 weeks apart, the drugs were Docetaxel and Cyclophosphamide. I just finished in the 17th March. After Round 1 I ended up in Flinders Medical Centre as I had Febrile Neutropenia basically my body didn't start making white blood cells and I was ill. I had to stay 2 nights while they pumped me full of antibiotics. This DOES NOT HAPPEN TO EVERYONE - please understand this. Because I went neutropenic I was then given an injection the day after chemo for the next 3 rounds (i gave it to myself) and this did not happen again. As I went through the public system I was not offered the cold cap the public system do not offer them as yet. I have to be truthful here my hair did start to fall out exactly 14 days after my first round and I did come undone I cried buckets, however I contacted my hairdresser to have it shaved off as I knew I wouldn't be able to cope with it falling out. This was my effort in taking some control back. Round 2 wasn't as bad as Round 1 however rounds 3 and 4 hit me like a Mack Truck and I was pretty much bed ridden for the week after chemo. For me it was the taste - it was and is horrendous and because of the taste nausea, but they do give you nausea medication. For me I would start to come good around Day 10 after chemo. I'm not sure what is next for me - I meet with my oncologist on the 9th of April. I'm hoping I've done enough. 2 lots of surgery and chemo. I just want my life back. Feel free to ask me any questions I will try an answer as truthfully as I can. None of us want to be here but alas here we are!!! It is crap but I've also had some of my most positive experiences since diagnosis as well. All the best and take care. Kerry66 Oh and I forgot to mention chemo brain - this is just a blast but it has made for some funny moments. You really just gotta laugh otherwise well crying was just to exhausting.4ViewsSign in to react to this post0CommentsTo chemo or not to chemo?
Firstly Im really sorry for this long post. I met with my oncologist for the first time on Thursday and here is what I understand. The surgery I've had is left breast mastectomy + 10 lymph nodes taken. 1 lymph node tested positive. Type of cancer is: ER - positive intensity 3+ PR - positive intensity 3+ HER-2 negative Score 1+ Below are the statistics based on the "f*%#$er NOT coming back within 10 years. Surgery (done) and walk away now with no further treatment (no hormone blockers) 83%. Surgery (done) and take hormone blockers (tamoxofin ?) 85% Surgery (done) chemo 4 cycles 3 weeks apart - docetaxel and cyclophosphamide, perhaps radiation for 5 weeks but definitely tamoxofin ? (not sure if I've spelt that right). 90% I know I'm not the only one but chemo frightens me it is my worst fear much bigger than my fear of spiders (and that's pretty big). For me loosing my breast was the easiest decision in this whole fecken nightmare. Is 7% really worth the side effects? Im totally spent I have been crying for 2 days now and not sleeping thus the other 4 attempts of trying to post this discussion. Never ever been so bloody scared in my entire life.623ViewsSign in to react to this post28Comments- 5ViewsSign in to react to this post0Comments
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This can't be happening to me!!!
Hi to all you amazing people, my name is Kerry and 2 weeks ago today I was diagnosed with BC. I've been hoping that this is a really bad dream but alas it isn't. I have kept working but every day has been a struggle - every minute feels like an hour. My days are long but the nights are longer I have had little sleep324ViewsSign in to react to this post13Comments
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