Janine60
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Re: Trying to make sense of it all.....
I had my planning scan today. I couldn’t do the breathing they wanted me to do. They said they might have to call me back. I’ll just have to wait and see. Treatment starts on Feb 20 for six weeks. They are going to try and schedule my treatment between 11 and 1pm so that we can keep my disabled sons routine as much as possible.0Views0likes0CommentsRe: Trying to make sense of it all.....
I already have osteoporosis which surprised me. I had no idea and only found out via the scan. When my mum had her cancer we focused around creating lots of good times and memories in our family. She only got 15 months following diagnosis. She was very strong and stoic. We were the same size and had the same style so I got a fair bit of her clothes after she was gone. I wear one of mum’s tops when I want to feel closer to her. I have a couple of roses that came out of her and my dad’s garden. I see each bloom as a sign that they are watching from heaven. I believe in God so I think that they are up in heaven and are angels looking down on us. It calms me and allows me to feel as though they are still around even though they are both gone.1View4likes0CommentsRe: Trying to make sense of it all.....
I am Grade 1. I had two tumours in my breast. The 2cm one caused breast changes which sent me to my GP. The second tumour was seen on ultrasound but not tested and my surgeon and I decided he should remove it as well. That also came back as Grade 1 but it was on 2mm. I think I was stage 2 because of the size of the first tumour. That’s what my Dr put on the request form for the Endopredict. I have clear margins and my nodes were clear. I have much of the same reaction as you. It’s early breast cancer and it’s very treatable but some days I have felt fragile. My mum had to wait over Christmas and we knew her cancer was terminal. To some effect, being mum to a family that has endured a fair bit of trauma, I have learned to suppress my emotions which is not good. We are a very resilient family and with adult children who are professionals, we are able to process emotions effectly. This breast cancer has been a shock to me. There is a lot of emotion that I hadn’t processed and I found myself getting angry at my mum, even though she is now passed away. I think it’s part of the grieving process and I have asked to see a psychiatrist, mainly because I am on medication for anxiety and depression. My GP is pushing for a psychologist. That’s ok but they can’t manage medication. I think what I have taken from the replies here is that it is still cancer. It is very important to have the radiotherapy to kill off any remaining cells that they have not seen. After radiotherapyi will be prescribed Tamoxifen which I will have to take for 5 years or more. I met the radiotherapy oncologist and I am settled. I do much better when I know what’s going on and I think that’s has been the crux of my reactions because it happened over the Christmas period. It will be ok.0Views2likes0CommentsRe: Trying to make sense of it all.....
Crusty - we used to live in Brisbane, in Ferny Grove but made the move south four and a half years ago to be near family. I have seen my oncologist once and he has made the referral to radiology but I haven’t heard when that is going to happen yet. I guess I’ll find out when I next see my oncologist on Feb 1.2Views0likes0CommentsRe: Trying to make sense of it all.....
I think we qualify. Kath said that in her post - people do die of Grade 1 cancers. I needed to hear that. I think I nudge stage 2 because the larger tumour was 2cm. I think it has to be less than 2cm to qualify as stage 1. My head tells me all the correct things and I think I cut myself short - it’s still cancer. I accepted the Endopredict. It’s very expensive but it will tell me around the potential to recur which is what I want to know. For us, logistically, it’s going to be a nightmare because we do not have radiotherapy in Shepparton. We have chosen to go to Bendigo and my husband is saying we’ll commute each day, to allow at least some of the day be predictable and we’ll be home each day. My two adult boys have intellectual disabilities which are severe. Their sister will fill in as much as possible. I am not sure how that is going to look for me yet. I think we need to acknowledge we do in fact have cancer although it is very treatable. I know that I haven’t been able to predict my emotions either and I have had a few ‘wobbly’ days. The women in this thread have been very supportive of me. Hugs. Good luck with your surgery and let us know how you go. Janine.1View0likes0CommentsRe: Trying to make sense of it all.....
I rang earlier when Kezmusc posted. I have an appointment tomorrow. The receptionist was saying that they had received the referral two days ago. My surgeon and the oncologist work and have rooms in the same private hospital. She was also saying that she was running another clinic today. I was a little unimpressed and said I had my op before Christmas! Maybe I am overreacting a little cos I feel a little fragile today, but then what she was telling me is not my issue and I shouldn’t have to wear that.1View3likes0CommentsRe: Trying to make sense of it all.....
My head knows that... but emotionally feeling a little fragile about it all. I don't think my husband realises the consequences of it all either. He can swing between condescending and patronising to totally supportive. It's just his way of processing the information as well. I get cranky at the patronising aspect of his reaction and I will tell him to put a sock in it because it is not at all helpful. He has some health issues that need addressing and I am going to tell him, he's no good to me if he's not well enough to support me. I want him to sort himself out as well. It's hard to steer the ship when I don't have a rudder.0Views2likes0Comments
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