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Felicia29
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Joined 7 years ago
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Re: Anyone on the EXPERT trial? New here :)
Thanks for this post. My med onco said it's likely I will be asked if I want to join this trial so I'm trying to find out what I can. I am more concerned about the side effects of the hormone inhibitors than the radiation but I can't find anyone who has opted not to take them. All these things I never thought I'd be researching but I take comfort in knowing that I am early stage and things look positive if not perfect.7Views0likes0CommentsRe: Feeling Lost
@Anne65 Thank you, I am recovering well. Can't believe it was only 4 weeks ago that I had my biopsy done! Still counting my blessings that everything has gone so well and feel like I can finally come up for air. I met the medical oncologist yesterday and will meet the radiation oncologist next Wednesday. Medical oncologist believes I will be asked to participate in a trial where radiation isn't done, only hormone treatment. I will be researching all of this before then. I won't get to meet the support group until next Monday as they met the day I went back for my biopsy results but I can check in online. Appreciate you stopping by xxx2Views0likes0CommentsRe: Feeling Lost
Wonderful words again, and @Flaneuse your metaphor was spot on, and it made me laugh. I also drew from "in the past". This does not have to be my future. There is no going back from this, my life has changed and I really really need to put myself first. I knew it was coming but now I can no longer deny it. Drawing on the beauty I have around me to heal. I have found a local support group who meet again in a few weeks.2Views0likes0CommentsRe: Feeling Lost
@kmakm wise and most appreciated words. My partner of 5 years is a police officer with PTSD & depression he refuses to get help for and he was shot many years ago and does not tolerate people who "sook" about pain. I asked him to read some of the tools that are out there but he refuses. He has been good asking questions at appointments, and will cook and clean but won't show me any emotional support, like a hug, even when I've begged him to. So it is what it is and I must remind myself that I can only do one thing at a time and self care is the most important thing right now. It's just really uncomfortable when someone seems to be going out of their way to be emotionally mean. The BCNA helpline were really good before my surgery. I haven't heard from my nurse for a week but I have emailed her. I do have some wonderful friends and family I am leaning on. And you guys are amazing. One breath at a time.3Views1like0CommentsRe: Feeling Lost
I'm coming to realise that crying might be a good thing. I was so big on being positive because it seemed that was what everyone (who as never gone through this) wanted. I wanted to be the good patient, the positive patient, don't bother anyone, and I apologised for all the emotions in hospital, assuring everyone I'd be more positive next week. God forbid I offend someone. I have zero emotional support at home and it has taken its toll which it was doing before this so why am I surprised. My son has come for the weekend, so I'm going to make the most of his company and just ride these emotions out because I don't know what else to do with them.5Views0likes0CommentsRe: Feeling Lost
@Anne65 thank you for thinking of me. The surgery went well, I continue to be blessed by the medical staff I have look after me. I'm home snuggled by the fire and the pain today isn't too bad. Just need to learn to sleep in weird and wonderful positions so that I can catch up on my sleep and get my emotions in check a bit more. But I'm getting there xxx5Views1like0CommentsRe: Feeling Lost
Thank you so much @Anne65 for your encouragement and support. It means so much xx I have been anxious and nervous but I'm feeling a little better this evening knowing this next step will be done soon. I am continually encouraged by medical staff at different hospitals telling me my surgeon is very good. My favourite cafe have supplied me with a good supply of their special chai tea so I am coming home to some comfort and I am all set for tomorrow. I will let you know how it all goes.17Views1like0Comments
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